The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

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Download a Diagnostic Checklist

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

September 25, 2025 | 12 p.m. ET

aftd helpline WEBINAR

The Lived Experience with FTD:

The Road to an FTD Diagnosis

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

News & Events

AFTD Webinar: Differentiating Behavioral Variant FTD from Alzheimer’s and Other Disorders

Join Dr. Howard Rosen, a behavioral neurologist and FTD expert, as he presents a clear and practical approach to diagnosing behavioral variant FTD (bvFTD) and differentiating it from Alzheimer’s disease,…

Family of Bruce Willis Announces Actor Has Been Diagnosed with FTD

Bruce Willis has been diagnosed with frontotemporal dementia (FTD), the actor’s family said in a statement released today. “Bruce always believed in using his voice in the world to help…

What Is Frontotemporal Dementia, the Disease Bruce Willis Is Diagnosed With?

Today, the family of Bruce Willis announced that the 67-year-old actor has been diagnosed with frontotemporal dementia (FTD), also known as frontotemporal degeneration. FTD is the most common dementia for…

bruce willis diagnosis brings international media attention to FTD image

Bruce Willis’s Diagnosis Brings International Media Attention to FTD

The announcement of Bruce Willis’s FTD diagnosis on February 16 has brought international media attention to this disease, bringing new FTD awareness to millions across the world. AFTD spoke to…

FTD more common in Europe than previously thought image

FTD More Common in Europe than Previously Thought, Study Says

FTD disorders are more common in Europe than previously thought, according to a recent study published in JAMA Neurology. As the research community pioneers better screening methods and continues the…

AFTD education conference persons with FTD advisory council image

You’re Invited to AFTD’s 2023 Education Conference

Are you a person with FTD? Are you unsure how this came about for you? Are you wondering about your future? Do you feel all alone? I would like to…

With Love 2023

Are you ready for a month-long celebration of love? We are! All throughout February, our 12th annual With Love campaign will let you share your stories of love, From the…

Los Angeles Marathon: March 19, 2023

Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Los Angeles area and raise funds to help people affected by…

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