The Association for Frontotemporal Degeneration

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

Learn More

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

September 25, 2025 | 12 p.m. ET

aftd helpline WEBINAR

The Lived Experience with FTD:

The Road to an FTD Diagnosis

13 Years of Food for Thought

Host an Event

Celebrate 13 years of turning meals into moments of awareness, connection, and hope.

Join us this September 21 – October 5

Read the Host Toolkit Donate Today

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

News & Events

Banner graphic: AFTD 2023 Education Conference - Denali/Takeda team interview

AFTD and Denali Therapeutics Discuss Takeda Pharmaceuticals Partnership to Develop FTD-Focused Therapeutic

Recently, members of the Denali Therapeutics team provided insights into their work and partnership with Takeda to develop a therapeutic to treat FTD-GRN (Frontotemporal Dementia caused by GRN gene mutation)…

Graphic: study evaluates the feasibility of ALLFTD's mobile app to collect diagnostic data

Study Evaluates the Feasibility of ALLFTD’s Mobile App to Collect FTD Diagnostic Data

A study published in the journal Alzheimer’s and Dementia evaluates whether a mobile app developed by the multi-site FTD research consortium ALLFTD can help users record and transmit scientifically acceptable…

STAT Article Explores the Connection Between FTD and Visual Creativity

An article published by STAT explores the connection between the onset of FTD and a spike in visual creativity that a small percentage of people with the disease experience. The…

Advocacy Update: AFTD Ambassadors Offer Insights at July NAPA Meeting

At the most recent meeting of the National Alzheimer’s Project Act (NAPA) Advisory Council, AFTD Ambassadors Katie Zenger and Terry Walter shared their experiences to help educate federal officials on the needs and concerns…

Recent CBS Report Discusses Link between FTD and Creativity with Dr. Bruce Miller

A report recently aired by KPIX in San Francisco highlights the spike in creativity that has been observed in a small percentage of people with FTD. Bruce Miller, MD, of…

Graphic: Wall Street Journal article shares story of gynecologist's five years of FTD uncertainty

Wall Street Journal Article Shares Story of Doctor’s Five Years of FTD Uncertainty

An article published in the Wall Street Journal shares the difficult journey former gynecologist Dr. Seth L. Stern faced in seeking a diagnosis for FTD, highlighting the many obstacles to…

Help & Support: Genetic Testing and DNA Banking

The decision to undergo genetic testing for FTD is deeply personal. Many want to know their genetic status to aid in family and financial planning, or to determine if they…

The Lived Experience of FTD: Tracking Changing Behaviors in FTD

For people living with an FTD diagnosis and their care partners, keeping track of the changing behaviors caused by the disease’s symptoms can be challenging. Kevin Rhodes of the Persons…

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