Skip to content
aftd-logo
AFTD HelpLine
Sign-Up
Donate
Search
Close
Search
Close
  • WHAT IS FTD?
        • Disease Overview
          • Behavioral Variant FTD
          • Primary Progressive Aphasia (PPA)
          • FTD-ALS
          • Progressive Supranuclear Palsy
          • Corticobasal Syndrome
        • FTD & Genetics
        • Find a Medical Center
        • FAQs
        • Glossary of FTD Terms
  • FIND SUPPORT
        • AFTD HelpLine
        • Find Support Near You
        • Newly Diagnosed
        • Managing FTD
          • Coordinating Care
          • Support for People with FTD
          • Support for Kids and Teens
        • Planning for Legal, Financial, and Health Insurance Issues
        • Resources
  • RESEARCH
        • Ways to Participate
        • Studies Seeking Participants
        • FTD Disorders Registry
        • For Researchers
  • GET INVOLVED
        • Ways to Give
        • Host an Event
        • Volunteer With Us
        • Be an Advocate
        • Calendar of Events
  • HEALTH PROFESSIONALS
        • Diagnosing FTD
        • Treating FTD
        • Partners in FTD Care
        • Healthcare Webinars
  • ABOUT US
        • Mission, Vision & Values
        • AFTD is Hiring
        • Our History
        • Staff
        • Board of Directors
        • Medical Advisory Council
        • Persons With FTD Advisory Council
        • AFTD Ambassadors
        • Strategic Plan
        • Financial and Impact Reports
  • NEWSROOM
        • News
          • FTD in the News
          • Events
          • Press Releases
          • Videos
          • Webinars
        • Publications
          • AFTD Insights
          • Help & Hope
          • Partners in FTD Care
        • Media
          • Contact our Newsroom
Search
Close
AFTD HelpLine
Sign-Up
Donate
aftd-logo
  • WHAT IS FTD?
    • Disease Overview
      • Behavioral Variant FTD
      • Primary Progressive Aphasia (PPA)
      • FTD-ALS
      • Progressive Supranuclear Palsy
      • Corticobasal Syndrome
    • FTD & Genetics
    • Find a Medical Center
    • FAQs
    • Glossary of FTD Terms
  • FIND SUPPORT
    • AFTD HelpLine
    • Find Support Near You
    • Newly Diagnosed
    • Managing FTD
      • Coordinating Care
      • Support for People with FTD
      • Support for Kids and Teens
    • Planning for Legal, Financial, and Health Insurance Issues
    • Resources
  • RESEARCH
    • Ways to Participate
    • Studies Seeking Participants
    • FTD Disorders Registry
    • For Researchers
  • GET INVOLVED
    • Ways to Give
    • Host an Event
    • Volunteer With Us
    • Be an Advocate
    • Calendar of Events
  • HEALTH PROFESSIONALS
    • Diagnosing FTD
    • Treating FTD
    • Partners in FTD Care
    • Healthcare Webinars
  • ABOUT US
    • Mission, Vision & Values
    • AFTD is Hiring
    • Our History
    • Staff
    • Board of Directors
    • Medical Advisory Council
    • Persons With FTD Advisory Council
    • AFTD Ambassadors
    • Strategic Plan
    • Financial and Impact Reports
  • NEWSROOM
    • News
      • FTD in the News
      • Events
      • Press Releases
      • Videos
      • Webinars
    • Publications
      • AFTD Insights
      • Help & Hope
      • Partners in FTD Care
    • Media
      • Contact our Newsroom
  • Search

AFTD Webinar: The Lived Experience with FTD: The Road an FTD Diagnosis

By Omair Siddiqui | September 3, 2025

The Lived Experience with FTD: The Road to an FTD Diagnosis   While awareness of FTD disorders is increasing, many people still face a lengthy and complicated path to receiving…

Read More

AFTD Grantee Discusses Use of Proteins for Diagnosing FTD and Tracking Severity in Interview

By Mike Mooney | September 3, 2025 | 0
Graphic Text: AFTD Grantee Discusses Use of Proteins for Diagnosing FTD and Tracking Severity in Interview | Graphic Background: Dr. Rowan Saloner

Rowan Saloner, PhD, recipient of AFTD’s 2024 Clinical Research Training Scholarship in FTD, discusses how measuring protein levels in cerebrospinal fluid (CSF) can help diagnose FTD in a recent interview with…

Read More

Guest Feature: Learning to live with familial FTD

By Mike Mooney | August 29, 2025 | 0
Graphic Text: Guest Feature - Learning to live with familial FTD | Background: A photo of Brooke Teweles as a child being held by her mother.

The following Guest Feature was written by Brooke Teweles, who lost her mother and aunt this year to a form of FTD-ALS with genetic roots. Brooke is a proud advocate…

Read More

AFTD Advocates Visit California Capitol for Passage of FTD Awareness Week Resolution

By Ed Foley | August 28, 2025 | 0

AFTD staff and advocates, including Emma Heming Willis, traveled to Sacramento on August 18 to celebrate California’s official recognition of FTD Awareness Week 2025. This is California’s second consecutive year…

Read More

Emma Heming Willis Interviewed by Diane Sawyer in Prime-Time Special

By Ed Foley | August 27, 2025 | 0

Emma Heming Willis was interviewed Tuesday night, August 26, on “Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special,” sharing her family’s experience of living with FTD.…

Read More

Book About Family’s FTD Journey Helps Raise Funds for AFTD’s Mission

By Ed Foley | August 25, 2025 | 0

“No Fault of His Own,” a novel released this summer, was the focus of a recent AFTD fundraiser organized by its author Gina Biskupic, a speech and language pathologist and…

Read More
« Newer Posts
Older Posts »

The Association for Frontotemporal Degeneration
2700 Horizon Drive, Suite 120
King of Prussia, PA 19406

Office: 866-507-7222

Media Inquiries

AFTD Privacy Policy and Disclaimer

Candid 2025-2
Four-Star Rating Badge - Full Color
Platinum 2023 1in height

Facebook logo featuring a white lowercase "f" on a blue background.A stylized logo featuring a white lowercase "a" intertwined with a circular design on a black background.YouTube logo featuring the word "YouTube" in white on a red background with a play button icon.A stylized white "X" on a black background, representing the logo of the social media platform X.
Instagram logo featuring a white camera icon on a gradient background of orange, pink, and purple.Logo of TikTok featuring a stylized musical note in white, blue, and red on a black background.LinkedIn logo featuring a blue background with a white "in" text and a circular dot.

AFTD STORE

Have Questions?

Contact AFTD's HelpLine at

1-866-507-7222

or email info@theaftd.org. 

AFTD's EIN is 41-2073220

© 2025 The Association for Frontotemporal Degeneration
All Rights Reserved

×
en_USEnglish
es_MXSpanish (Mexico) fr_FRFrench de_DEGerman sv_SESwedish pt_PTPortuguese it_ITItalian nl_NLDutch da_DKDanish pl_PLPolish es_ESSpanish (Spain) en_USEnglish
AFTD uses cookies to ensure that website visitors have the best experience. We value your privacy.
Continuing to use this site implies consent with our Privacy Policy.


AFTD never sells user data.
Cookie settingsACCEPT
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
CookieDurationDescription
cookielawinfo-checkbox-analytics11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics".
cookielawinfo-checkbox-functional11 monthsThe cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional".
cookielawinfo-checkbox-necessary11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary".
cookielawinfo-checkbox-others11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other.
cookielawinfo-checkbox-performance11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance".
viewed_cookie_policy11 monthsThe cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
Save & Accept