Dear HelpLine: The Differences Between Clinical Research and Clinical Medical Care
Dear HelpLine, I have FTD and have enrolled in a research study at a major medical center. My care partner and I travel to the site twice a year and get to see experts in FTD while we’re there. Do I still need to see a neurologist in my community? It is understandable to want…
Read MoreLinde Jacobs Shares Her Family’s FTD Journey with the New York Times
A recent article in The New York Times highlights the inspiring story of Linde Jacobs, a nurse and advocate carrying a genetic frontotemporal degeneration (FTD) variant. Her journey exemplifies the resilience and determination needed to confront the challenges of living with a known FTD-causing gene while striving to make a difference for others. Linde carries…
Read MoreVirtual Meet & Greet for MT, WY, ND, and SD
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Montana, Wyoming, North Dakota, and South Dakota on Saturday, January 25, starting at 11:00 a.m. MT. RSVP for this event by emailing event host Susan Meagher at suselenae@gmail.com. To learn more, download this flyer.
Read MoreEmpower a Future Free of FTD with a Year-End Gift
For over 20 years, AFTD’s volunteers, supporters, and partners raised awareness, supported one another, educated healthcare professionals, advanced research, and advocated for a better tomorrow. When you support AFTD’s mission, you bring help and hope to people who are facing – or will face – FTD. Each donation, of any amount, sustains initiatives such as…
Read MoreAFTD Research Team: A Year in Review
2024 has been a hopeful year for FTD Research, and it’s also been an exciting year for the AFTD research team. It isn’t easy to summarize all that’s been accomplished in a year, but we’ve provided some interesting highlights! This year, the AFTD team welcomed two new staff members, Dr. Nicole Bjorklund as Director of…
Read MoreSimply Relaxing Coloring Pages
Janice Mandes created a one-of-a-kind coloring book called Simply Relaxing Coloring Pages in honor of her mom. Janice made it to inspire creativity and provide a calming activity for individuals and families impacted by frontotemporal degeneration (FTD). This project was inspired by her mom, who is living with FTD. She wanted to create coloring pages…
Read MoreJanuary 29, 2025: FTD Information Session in Plymouth, MN
AFTD Ambassador Nanci Anderson is hosting an FTD information session at the Plymouth Community Center in Plymouth, Minn. (14800 34th Avenue N.). She will provide an overview of FTD and discuss resources available in the Twin Cities and from AFTD. This session is being sponsored by the city of Plymouth. RSVP by emailing Nanci at…
Read MoreFTD: The Other Dementia — Information Session in Plymouth, MN
AFTD Ambassador Nanci Anderson is hosting an FTD information session at the Plymouth Community Center in Plymouth, Minn. She will provide an overview of FTD and discuss resources available in the Twin Cities and from AFTD. This session is being sponsored by the city of Plymouth. RSVP by emailing Nanci at nanderson@theaftd.org.
Read MoreArticle Lists Ways Researchers Can Involve People with Dementia in Identifying Research Priorities
A research article published in the Journal of the American Geriatrics Society discusses how researchers can better involve people living with FTD and other types of dementia in discussions to identify research priorities. The article provides strategies for involving people living with dementia and identifies areas for improvement in emergency care for people with dementia.…
Read MorePerspectives in FTD Research Webinar: FTD Research 2024 – Where We’ve Come From and Where We’re Headed
The science of FTD is evolving at a rapid pace and it can be difficult to interpret the scientific advancements and how they may impact families facing an FTD diagnosis. In this Perspectives in FTD Research webinar, presented jointly by AFTD and the FTD Disorders Registry, AFTD’s Senior Director of Scientific Initiatives, Penny Dacks, PhD,…
Read More
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Polish 
Spanish (Spain)