The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

AFTD CEO
Susan Dickinson to Retire in May 2026

Read More View Job Posting

AFTD Board Leading Search for Successor

Supporting FTD Care Partners with Individual Therapy:

HEALTHCARE PROFESSIONAL WEBINAR

Approaches and Key Considerations

CEC credit available for viewing the live webinar

Tuesday, November 18, 2025
12-1 p.m. EST

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

News & Events

Study Evaluates the Efficacy of Nasally Administered Hormone for Apathy in FTD

A study published in the journal The Lancet Neurology evaluates the efficacy of the hormone oxytocin as a treatment for apathy, a common symptom of FTD disorders. Co-authors of the…

ABC News Honors AFTD Ambassador Spencer Cline as “Person of the Week”

Raising FTD awareness was a key goal of Spencer Cline’s as he set out from Oregon on a bike ride across America last summer. He got a well-deserved tailwind in…

Speech Therapy CE Course Features AFTD Ambassador Dawn Ducca

AFTD Ambassador Dawn Ducca is interviewed in a new hourlong continuing education episode for speech language pathology (SLP) professionals on the platform Speech TherapyPD. The episode, “Understanding and Caring for…

Hope Rising Benefit Raises Over $1.9 Million for AFTD’s Mission

Top row, L-R: Hope Rising MC Paula Zahn, Hope Rising Benefit Co-Chairs Joan Berlin and Anna Wintour, AFTD Ambassador Spencer Cline, Ariana DeBose, New York State Senator Michelle Hinchey

Dear HelpLine: Advance Care Planning

Dear HelpLine, My spouse was recently diagnosed with FTD and we want to make sure we are prepared for the future. Our doctor said to consider advance care planning, but…

Advancing Hope: AFTD Announces 2025 FTD Research Roundtable Leadership Committee

AFTD has launched its 3rd year of the FTD Research Roundtable. This program offers a forum for drug developers, regulators, academic leaders, and advocates to discuss shared challenges and potential…

FBLI - Senator Hinchey Reintroduces Bill

N.Y. Senator Hinchey Reintroduces Bill to Create State FTD Registry

A bill that would establish a registry of FTD diagnoses in New York State was reintroduced in January by New York state Sen. Michelle Hinchey. Sen. Hinchey and AFTD’s Director…

Title Graphic: Bridging the Gap Between FTD and ALS - 04/2025

Partners in FTD Care: Bridging the Gap Between FTD and ALS

FTD lies at the genetic and symptomatic intersection of a number of neurodegenerative disorders. One of them is amyotrophic lateral sclerosis (ALS). A variant in the C9orf72 gene is the…

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