The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Psilera Announces Positive Preclinical Data for FTD Intervention Candidate

Biotechnology company Psilera announced positive preclinical data for its FTD drug candidate, moving it another step towards first-in-human studies. The company also underscored promising data from efficacy studies conducted by…

AFTD Care Partner Learning Series Webinar: Navigating Behavioral Variant FTD Symptoms

Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one’s personality, which can be extremely distressing for the person diagnosed and…

Guest Feature: “Yes, and…” by Catherine Savini

Navigating the symptoms of FTD can be difficult for loved ones, especially when someone living with the disease experiences memory-related challenges. However, as Catherine Savini shares, meeting symptoms with “yes, and” instead…

Paris, IL mayor, Craig Smith, center, presents Dawn and Tim Kirby with a proclamation recognizing FTD Awareness Week.

When One Voice Sounds Like a Chorus: Dawn Kirby’s Relentless Campaign to Raise FTD Awareness

Dawn Kirby and her husband, Tim, are getting the word out about FTD. The couple were recently featured in an article in the Prairie Press (Paris, Ill.), where they talked…

Lima Awareness Week Proclamation - FBLI 1

AFTD Volunteer Secures 3 FTD Awareness Week Proclamations in Ohio

Lima, Ohio is the most recent community to officially proclaim September 22-29 as FTD Awareness Week. Resident Jack George successfully advocated for the official proclamation, which Lima Mayor Sharetta Smith…

Advancing Hope: AFTD Hosts Industry Advisory Panel

On August 8 and 9, AFTD hosted an industry advisory panel in which a group of people whose lives have been touched by FTD shared their experiences and perspectives with…

Text: One woman’s journey: from getting diagnosed to attempting suicide to embracing life Background: Photo of Deb Jobe, Persons with FTD Advisory Council member

Guest Feature: One Woman’s Journey – from Getting Diagnosed to Attempting Suicide to Embracing Life

September is Suicide Prevention Month. Below, Deb Jobe, a member of AFTD’s Persons with FTD Advisory Council, courageously shares the story of her suicide attempt following an FTD diagnosis, and…

Medical Technology CEO Discusses Using EEG to Differentiate FTD and Alzheimer’s

In an interview with Neurology Live, Advanced Brain Monitoring CEO Chris Berka shares insights from a pilot study that found how electroencephalography (EEG) can be used to differentiate between FTD,…

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