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  • WHAT IS FTD?
    • Disease Overview
      • Behavioral Variant FTD
      • Primary Progressive Aphasia (PPA)
      • FTD-ALS
      • Progressive Supranuclear Palsy
      • Corticobasal Syndrome
    • FTD & Genetics
    • Find a Medical Center
    • FAQs
    • Glossary of FTD Terms
  • FIND SUPPORT
    • AFTD HelpLine
    • Find Support Near You
    • Newly Diagnosed
    • Managing FTD
      • Coordinating Care
      • Support for People with FTD
      • Support for Kids and Teens
    • Planning for Legal, Financial, and Health Insurance Issues
    • Resources
  • RESEARCH
    • Ways to Participate
    • Studies Seeking Participants
    • FTD Disorders Registry
    • For Researchers
  • GET INVOLVED
    • Ways to Give
    • Host an Event
    • Volunteer With Us
    • Be an Advocate
    • Calendar of Events
  • HEALTH PROFESSIONALS
    • Diagnosing FTD
    • Treating FTD
    • Partners in FTD Care
    • Healthcare Webinars
  • ABOUT US
    • Mission, Vision & Values
    • AFTD is Hiring
    • Our History
    • Staff
    • Board of Directors
    • Medical Advisory Council
    • Persons With FTD Advisory Council
    • AFTD Ambassadors
    • Strategic Plan
    • Financial and Impact Reports
  • NEWSROOM
    • News
      • FTD in the News
      • Events
      • Press Releases
      • Videos
      • Webinars
    • Publications
      • AFTD Insights
      • Help & Hope
      • Partners in FTD Care
    • Media
      • Contact our Newsroom
  • Search

Depression Worsens Over Time for Dementia Caregivers, Study Suggests

By Matt Ozga | September 10, 2020 | 0

Caring for a partner or spouse with a new dementia diagnosis is associated with worsening, and long-lasting, depressive symptoms, according to a new study that underscores the toll caregiving can…

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New Research Suggests Autoimmune Diseases in FTD/ALS Linked to C9orf72 Mutation

By Julie Sullivan | September 8, 2020 | 0

The findings of a new study focused on the C9orf72 mutation could help to explain why some people who develop FTD and/or ALS are seemingly more susceptible to autoimmune disorders.…

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Next Avenue Emphasizes Financial Impact of Dementia Care Amidst COVID-19

By Julie Sullivan | September 8, 2020 | 0

In a recent article, Next Avenue highlights the impact the COVID-19 pandemic has had on those caring for a loved one with dementia, emphasizing the increased need for care as…

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Young Caregiver Speaks to Finishing College While Caring for Loved One with Dementia

By Julie Sullivan | September 4, 2020 | 0

For recent college graduate Lumiere Rostick, the decision to move in with their grandparents to help care for their grandfather, who has slow-advancing dementia, was a given. The 22-year-old recently…

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Studies Co-Authored by AFTD MAC Member Reveal 3D Tau Structure Unique to FTD

By Julie Sullivan | September 2, 2020 | 0

In a comparison of protein filaments extracted from brain tissue donated by persons with FTD and other neurological disorders, scientists have revealed unique 3D structures of tau that vary by…

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FTD Research and Clinical Trials during the COVID-19 Pandemic

By Julie Sullivan | September 2, 2020 | 0

The past few years have been what we hope is the start of a groundbreaking time for discovery in clinical trials aiming to treat and prevent frontotemporal dementia (FTD). Large…

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AFTD News: Summer 2020, Vol. 17, Issue 2

By Matt Ozga | September 1, 2020 | 0

In this issue: COVID-19 and FTD Research: Challenges and Silver Linings; Zoey’s Extraordinary Playlist Brings FTD Awareness to National TV; Spotlight on… Aisha Adkins, FTD Caregiver; World FTD Awareness Week…

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Journalist Explores Impact of Death and Loss in FTD During COVID-19

By Julie Sullivan | August 31, 2020 | 0

In a personal account of her own family’s journey with progressive supranuclear palsy (PSP), Post-Star reporter Kathleen Moore explores the challenges of navigating death and loss during COVID-19. The three-part…

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Webinar: FTD Care Planning with Essential Legal Documents

By Lauren Gauthier | August 28, 2020 | 0

Navigating care after an FTD diagnosis can be like facing rough, uncharted waters. This webinar provides information on ways to prepare for this challenging journey, highlighting the use of two…

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Take Action Today: Host a Virtual Meet & Greet

By Julie Sullivan | August 28, 2020 | 0

In response to COVID-19, AFTD has developed a new volunteer activity to keep people in the FTD community connected while remaining at home: Virtual Meet & Greets. During a time…

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