Watch the 2020 World FTD Marathon…
On October 3, World FTD United, an international coalition of FTD-focused organizations, delivered 17 consecutive hours of FTD awareness and information with the first-ever World FTD Marathon — all of…
Read MoreWebinar: Living the Grief of FTD – The Winding Paths of Loss, Love, and Resilience
In FTD, losses begin with the first presenting symptoms. Even before a diagnosis, persons diagnosed and their families experience tremendous fear and worry — which, over time, develop into feelings…
Read MoreBuilding a Future Free of FTD: AFTD’s 2020 Annual Report
AFTD’s 2020 Annual Report documents progress made in the fiscal year commencing July 1, 2019 and ending June 30, 2020. Through donor support, AFTD advanced the key areas of our…
Read MoreWebinar: FTD and Genetic Testing – A Practical Approach
About 40% of people affected by FTD have a family history with at least one other relative diagnosed with some form of neurodegenerative disease. Knowing as much as you can…
Read MoreWhat to Do About… Managing Logopenic Variant PPA
Partners in FTD Care, Fall 2020 Download the full issue (pdf) The logopenic variant of primary progressive aphasia (PPA) presents a unique set of challenges for persons diagnosed, care partners and…
Read MoreFrom a Caregiver’s Perspective: The Importance of Speech and Language Therapy in PPA
Partners in FTD Care, Fall 2020 Download the full issue (pdf) by Barb Murphy For people living with PPA, speech and language therapy can help slow the decline of language ability…
Read MoreFrom a Caregiver’s Perspective: Music Therapy and Language Retention
Partners in FTD Care, Fall 2020 Download the full issue (pdf) by Gary Eilrich Soon after retiring, I noticed my wife was having trouble expressing herself. Our primary care physician suggested…
Read MorePPA Subtyping: Helping or Hindering the Understanding of PPA?
Partners in FTD Care, Fall 2020 Download the full issue (pdf) by Emily Rogalski, PhD One of the most confusing topics for PPA caregivers, clinicians, and researchers studying the condition has…
Read MorePPA and Depression
Partners in FTD Care, Fall 2020 Download the full issue (pdf) People with PPA experience progressive language loss, but often retain memory, personality, reasoning, and insight into their condition until the…
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