Living Alone with CBD: Balancing Autonomy and Risk
Partners in FTD Care, Winter 2021 Download the full issue (pdf) by Mary O’Hara, LCSW While living alone in early corticobasal degeneration (CBD) may be possible, it will eventually stop being…
Read MoreFrom a Caregiver’s Perspective: A Guide to Apraxia in CBS
Partners in FTD Care, Winter 2021 Download the full issue (pdf) by Janet Edmunson Apraxia is considered a core feature of CBS. However, people living with CBS and their families often…
Read MoreIt May Not Be Parkinson’s: A Look at Corticobasal Degeneration
Partners in FTD Care, Winter 2021 Download the full issue (pdf) Corticobasal degeneration (CBD) is a rare neurodegenerative disease that results in nerve cell loss, scarring, and shrinkage of the deeper…
Read MoreWhat to Do About… Corticobasal Syndrome
Partners in FTD Care, Winter 2021 Download the full issue (pdf) While often misdiagnosed as Parkinson’s disease based on their similar pathological symptoms, corticobasal degeneration (CBD) is a distinct condition that…
Read MoreCOVID-19: Navigating Risk for People with FTD and their Families
Dear Friends, As our understanding of COVID-19 evolves, I wanted to write you to share expert information and guidance, drawing from members of AFTD’s Medical Advisory Council, and from leading…
Read MoreHusband Honors Wife in Final “With Love” Episode of “Remember Me” Podcast
In the final special episode of the Remember Me podcast in collaboration with the 10th anniversary of the With Love campaign, Scott Rose shared his story of love in honor of the love of his life, his late wife, Maureen…
Read MoreFebruary’s Athlete of the Month: Cathy Stevens
Our Athlete of the Month for February is Cathy Stevens from Maine. Cathy’s dedication to using the Charity Miles app every time she walks has resulted in an impressive 650…
Read MoreFebruary’s Volunteer of the Month: Jen Hoar
February’s volunteer of the month is Jen Hoar. While navigating the challenges of her dad’s journey with FTD, Jen learned the importance of feeling heard and understood. “For me, the…
Read MoreWords of Encouragement: Painting the Pig
by Anthony Cordasco I found myself thinking about painting the pig today. A 2×12” pine board known as a fascia forms the end of the ceiling joists for the small…
Read MoreWebinar: Brain-Behavior Connections in Frontotemporal Degeneration
The cognitive and behavioral changes experienced in FTD are closely related to the loss of neurons in the frontal and temporal lobes of the brain. Understanding the connection between changes…
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