What's New
ALLFTD2 Study Receives Notice of Award for NIH Grant for Five Years of Funding
In exciting news for the FTD research community, the ALLFTD study has received funding from the National Institutes of Health for the next phase, currently referred to as ALLFTD2. ALLFTD…
Advocacy Update: FTD Research at NIH Highlighted in FY26 LHHS Appropriations Reports
AFTD is excited to share that congressional reports for the Fiscal Year (FY) 2026 Labor, Health and Human Services, Education, and Related Agencies (LHHS) appropriations bills in the Senate and…
AFTD Ambassador Carrie Edwards donates lottery winnings to AFTD
Carrie Edwards recently surprised Virginia lottery officials by telling them her plans for the $150,000 she won on September 8. Those plans? Give it all away. But those who know…
Group of MAPT Gene Variations Linked to Greater Risk of Pick’s Disease Pathology, Study Finds
A study published in The Lancet Neurology found that a MAPT genetic variant is associated with an increased risk of an FTD tau pathology called Pick’s disease. This MAPT gene…
AFTD Ambassador Julia Pierrat featured in Los Angeles Times
“It feels like walking into a closet you haven’t been in in a while, looking for something you know is there, but you don’t know where. You just give up.…
Emma’s Book Tour Updates
As Emma Heming Willis visits with media outlets to discuss her new book, “The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path,” we’ll summarize those appearances here (and…
Advancing Hope: AFTD and Registry Staff Attend International Dementia Conference
AFTD and FTD Disorders Registry staff attended the Alzheimer’s Association International Conference (AAIC) at the end of July in Toronto, Canada. The conference drew over 19,000 attendees and had a…
Dear HelpLine: AFTD’s Awareness Cards
Dear Helpline, When we’re out shopping, my loved one sometimes feels overwhelmed, and I worry people don’t realize their behavior is part of their condition. How can I support them…
FTD Science Digest: What happens when a Phase 3 clinical trial concludes?
You may know that a number of ongoing clinical trials are evaluating treatments with the potential to slow, or even stop, the progression of FTD. (Some of those trials are…
FTD Research Spotlight: Genetic FTD Trials Update – Approaching a Phase 3 Milestone
The FTD research landscape is on the verge of major developments. For the first time, a Phase 3 trial has been completed for a potentially disease-modifying treatment for a type…
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