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Advancing Hope – AFTD Staff Attend 2025 ALS Nexus in Dallas
Amanda Gleixner, PhD, attended the Amyotrophic Lateral Sclerosis (ALS) Nexus, held in Dallas, TX in August. The ALS Nexus is an annual conference hosted by the ALS Association which brings…
The Lived Experience of FTD: The Benefits of Pets
One of my favorite activities is throwing the squeaky ball in the yard and laughing while my sweet Tilly girl takes off after it like a speeding train with her…
Dr. Laura Podcast Hosts AFTD’s Esther Kane
AFTD Director of Support and Education Esther Kane, MSN, RN-CDP, joined Dr. Laura Schlesinger this week on her podcast, Dr. Laura’s Deep Dive. Kane provided context and background on FTD…
Advancing Hope: AFTD Helps Organize C9orf72 Prevention Trial Workshop
A recent publication, Design considerations for C9orf72 disease prevention trials, arose from a two-day workshop that was led by Adam Boxer, MD, PhD, (UCSF) and Michael Benatar, MD, PhD, (University…
Dear Helpline: What Comes After an FTD Diagnosis?
When a doctor first says the words frontotemporal degeneration (FTD), everything changes. Some describe it as feeling like the ground drops out from under them — fear, grief, and endless…
Partners in FTD Care: Genetic FTD Trials Update – Approaching a Phase 3 Milestone
The FTD research landscape is on the verge of major developments. For the first time, a Phase 3 trial has been completed for a potentially disease-modifying treatment for genetic FTD,…
Comedian Shares Her FTD Caregiving Journey on Podcast
Obviously there’s nothing funny about an FTD diagnosis—even for someone who makes their living finding the humor in everyday life. But Kelsey Cook, a nationally touring comedian known for her…
People at Potential Risk of Developing FTD Share Views on Effects of Predictive Biomarker Testing
People at risk, or potentially at risk, of developing FTD from a genetic mutation shared their perspectives on the potential effects the results of predictive biomarker testing would have on…
Tips & Advice: The Hidden Economic Cost of an FTD Diagnosis
World FTD Awareness Week is highlighting the financial impact of FTD today. When families receive an FTD diagnosis, they face more than the emotional upheaval of a progressive neurological condition—they…
ALLFTD2 Study Receives Notice of Award for NIH Grant for Five Years of Funding
In exciting news for the FTD research community, the ALLFTD study has received funding from the National Institutes of Health for the next phase, currently referred to as ALLFTD2. ALLFTD…
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