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Emma’s Book Tour Updates
As Emma Heming Willis visits with media outlets to discuss her new book, “The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path,” we’ll summarize those appearances here (and…
Advancing Hope: AFTD and Registry Staff Attend International Dementia Conference
AFTD and FTD Disorders Registry staff attended the Alzheimer’s Association International Conference (AAIC) at the end of July in Toronto, Canada. The conference drew over 19,000 attendees and had a…
Dear HelpLine: AFTD’s Awareness Cards
Dear Helpline, When we’re out shopping, my loved one sometimes feels overwhelmed, and I worry people don’t realize their behavior is part of their condition. How can I support them…
FTD Science Digest: What happens when a Phase 3 clinical trial concludes?
You may know that a number of ongoing clinical trials are evaluating treatments with the potential to slow, or even stop, the progression of FTD. (Some of those trials are…
FTD Research Spotlight: Genetic FTD Trials Update – Approaching a Phase 3 Milestone
The FTD research landscape is on the verge of major developments. For the first time, a Phase 3 trial has been completed for a potentially disease-modifying treatment for a type…
Emma Heming Willis Shares Family Updates on The Oprah Podcast
Emma Heming Willis, Bruce Willis’s wife and caregiver, was interviewed by Oprah Winfrey on “The Oprah Podcast” yesterday about her family’s journey with FTD. Mrs. Willis is currently making a…
AFTD Grantee Discusses Use of Proteins for Diagnosing FTD and Tracking Severity in Interview
Rowan Saloner, PhD, recipient of AFTD’s 2024 Clinical Research Training Scholarship in FTD, discusses how measuring protein levels in cerebrospinal fluid (CSF) can help diagnose FTD in a recent interview with…
Guest Feature: Learning to live with familial FTD
The following Guest Feature was written by Brooke Teweles, who lost her mother and aunt this year to a form of FTD-ALS with genetic roots. Brooke is a proud advocate…
AFTD Advocates Visit California Capitol for Passage of FTD Awareness Week Resolution
AFTD staff and advocates, including Emma Heming Willis, traveled to Sacramento on August 18 to celebrate California’s official recognition of FTD Awareness Week 2025. This is California’s second consecutive year…
Emma Heming Willis Interviewed by Diane Sawyer in Prime-Time Special
Emma Heming Willis was interviewed Tuesday night, August 26, on “Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special,” sharing her family’s experience of living with FTD.…
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