What's New
Advancing Hope: AFTD and partners Award $2.1 Million in New FTD Diagnostic Biomarkers Initiative
AFTD currently has six active research funding programs to support FTD research at all stages, from discovery research to clinical trials. The newest of these programs is the FTD Diagnostic…
From Sean 1.0 to Sean 2.0: One Couple’s FTD Journey
When Sean Durbin noticed he was struggling to find the right words during conversations, he knew something was off. The once-boisterous extrovert who thrived at the center of family gatherings…
Hope on the Horizon: Daniel Barvin’s Personal Mission to Transform FTD Treatment
In 2017, Daniel Barvin was newly married, MBA in hand, and building a promising career in wealth management at Morgan Stanley. Then came the diagnosis that would reshape everything: He…
FTD Science Digest: AFTD Research Priorities in 2026
As the new year begins, AFTD continues to implement a three-year strategic plan across five mission pillars. The research pillar strives to drive research to a cure and improve the quality of…
FTD Research Spotlight: AFTD Research Priorities in 2026
As the new year begins, AFTD continues to implement a three-year strategic plan across five mission pillars. The research pillar strives to drive research to a cure and improve the quality of…
Our Deepest Gratitude to Dr. Walter Koroshetz
The Association for Frontotemporal Degeneration extends its deepest gratitude to Dr. Walter Koroshetz for his 18 years of distinguished leadership of the National Institute of Neurological Disorders and Stroke (NINDS)…
Advancing Hope: Successful 9th Annual FTD Social at the Society for Neuroscience Conference
Thank you to everyone who attended the 9th Annual FTD Social, hosted by AFTD at the Society for Neuroscience Conference in November! This year’s attendees represented current and previous grantees,…
AFTD and partners award $2.1 million in first year of new FTD Diagnostic Biomarkers Initiative
The Association for Frontotemporal Degeneration (AFTD), Alzheimer’s Association, Rainwater Charitable Foundation, and the Robertson Foundation have come together to award three grants totaling $2.1 million on frontotemporal degeneration (FTD) diagnostic…
Dear HelpLine: AFTD’s New Genetic Counseling and Testing Recommendation
Dear HelpLine, I recently heard about the new recommendation that all people diagnosed with FTD should be offered genetic counseling and testing. My husband was diagnosed 3 years ago. What…
International Consortium Demonstrates Effectiveness of Large-Scale Protein Database in Study
An article published in Nature Medicine demonstrates the effectiveness of a large-scale dementia protein database composed of identically formatted and easily combinable data. The Global Neurodegeneration Proteomics Consortium (GNPC) database…
