What's New
Advancing Hope: Successful 9th Annual FTD Social at the Society for Neuroscience Conference
Thank you to everyone who attended the 9th Annual FTD Social, hosted by AFTD at the Society for Neuroscience Conference in November! This year’s attendees represented current and previous grantees,…
AFTD and partners award $2.1 million in first year of new FTD Diagnostic Biomarkers Initiative
The Association for Frontotemporal Degeneration (AFTD), Alzheimer’s Association, Rainwater Charitable Foundation, and the Robertson Foundation have come together to award three grants totaling $2.1 million on frontotemporal degeneration (FTD) diagnostic…
Dear HelpLine: AFTD’s New Genetic Counseling and Testing Recommendation
Dear HelpLine, I recently heard about the new recommendation that all people diagnosed with FTD should be offered genetic counseling and testing. My husband was diagnosed 3 years ago. What…
International Consortium Demonstrates Effectiveness of Large-Scale Protein Database in Study
An article published in Nature Medicine demonstrates the effectiveness of a large-scale dementia protein database composed of identically formatted and easily combinable data. The Global Neurodegeneration Proteomics Consortium (GNPC) database…
Help & Hope in Review: The Top Articles of 2025
AFTD is committed to ensuring Help & Hope delivers informative articles and practical resources to ease the challenges you might face on the FTD journey. As we approach the end…
Advancing Hope: Congratulations to AFTD Research Grant Awardees!
Did you know there are currently six active AFTD research grant programs to support FTD research at all stages, from discovery research to clinical trials? One of these programs is…
AFTD Ambassador Carrie Edwards Shares Her Lottery Story on Tamron Hall
In a recent holiday episode of the Tamron Hall Show, AFTD Ambassador Carrie Edwards opened up about an extraordinary act of generosity that has touched hearts across the country. Edwards shared the…
From Caregiver to Advocate: One Woman’s Mission to Transform FTD Support
When police knocked on Katie Brandt’s door in November 2008, she feared the worst. They told her that her husband Mike, then 29, had been clocked driving 90 miles an…
The Lived Experience of FTD: “Holiday Hacks” That Can Make the Season More Enjoyable
The following guest feature was written by Kevin Rhodes and other members of AFTD’s Persons with FTD Advisory Council. Members of the Council help guide AFTD on its mission for an FTD-free future. The holidays…
GemVax & KAEL Announces Results from Phase 2 PSP Study
South Korean biopharmaceutical company GemVax & Kael announced the results from its Phase 2 clinical trial of a potential drug for progressive supranuclear palsy Richardson’s syndrome (PSP-RS, a PSP subtype).…
