Events
Calendar of Events
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4 events,
Ellie’s Butterflies
Ellie's Butterflies is a children's picture book written by Alecia Smith, described as a "loving story about understanding dementia." When Alecia's father was diagnosed with FTD at the age of 61, all three of her children were under the age of five. Alecia searched for a children's book that could help her have a conversation…
Tangle Syx – 1% for AFTD
Tangle Syx, a sustainable clothing company, is donating one percent of all sales to support AFTD’s mission in honor of founder Alyssa Radcliff’s husband, Chris Radcliff. He was diagnosed with FTD in 2012, when the couple’s twins were only two years old. Chris, who was a senior engineer, died in 2016 at the age of…
A Lot Like Fun – Only Different
A Lot Like Fun – Only Different features stories, past and present, of author Jack Livingston and his longtime friend Chris Kelley, who is currently living with FTD. Jack says, “Chris was the ringleader of ‘cool stuff,’ routinely sweeping up anyone and everyone that was bold or naïve enough to join him in his rule-bending,…
Waverles – 5% for AFTD
Waverles, a woman’s comfort wear clothing brand, is donating five percent of all sales to support AFTD’s mission in honor of founder Brianna Amoroso’s sister, Daria Amoroso-McCue. Daria was diagnosed with FTD in April 2021; she died in July 2021 at the age of 40. Brianna hopes to raise more awareness about FTD and its…
5 events,
5th Annual Crusade for a Cure Golf Tournament
AFTD Ambassador Deb Scharper will host the 5th Annual Crusade for a Cure Golf Tournament on September 4, 2021, with proceeds benefiting AFTD's research initiatives. The tournament will be held at Sunny Brae Golf Course (Osage, IA) and will feature a two-person best shot format on 18 holes, plus mulligan and fairway games. There will…
5 events,
Real Talk: Conversations About Family Caregiving in the Black Community
Real Talk: Conversations About Family Caregiving in the Black Community
The Congressional Black Caucus Foundation will host their 50th Annual Legislative Conference From September 12– 17. The CBCF Annual Legislative Conference (ALC) is the leading policy conference on issues impacting African Americans and the global Black community. Thought leaders, legislators and concerned citizens engage on economic development, civil and social justice, public health and education…
5 events,
Webinar: The Role of Neuropalliative Care in FTD
Webinar: The Role of Neuropalliative Care in FTD
How can neuropalliative care support individuals and families with FTD? This AFTD Educational Webinar will define neuropalliative care and its role in managing FTD symptoms and improving quality of life. Christina Vaughan, MD, of the University of Colorado, will discuss the difference between palliative care and hospice, and explain the role both play in comprehensive…
5 events,
Central and Western New York Meet and Greet
Central and Western New York Meet and Greet
Join AFTD volunteer Amy Canavan for a Virtual Meet & Greet for those in Central & Western New York. Connect via Zoom with others in your area whose lives are affected by FTD . Limited spots available. RSVP is required to receive Zoom meeting access and password. To RSVP, or if you have questions,…
6 events,
Food for Thought 2021
Food for Thought, AFTD’s flagship grassroots fundraising and awareness campaign, is back for its ninth year to help raise critical funds in support of AFTD’s mission. Held September 26 through October 10, Food for Thought encourages people across the country and the world affected by FTD to “Take Time with Friends and Family. Take Action.”…
Mammoth Coffee Roasting Company – 20% to AFTD
Mammoth Coffee Roasting Company is donating 20% of the proceeds of any coffee product order to support AFTD's mission from September 26 through December 31, 2021, as part of AFTD's Food for Thought campaign. Enter coupon code AFTD at checkout for your order to apply. This fundraiser is nationwide as orders can be placed online…
8 events,
Understanding Specialty Dementias: Symptoms, Communication Practices and Resources
Understanding Specialty Dementias: Symptoms, Communication Practices and Resources
Join AFTD Ambassador Corey Esannason for an interactive presentation about Specialty Dementias such as Lewy Body, Frontotemporal Dementia and Vascular Dementia. This virtual presentation will provide an opportunity for caregivers, families, and healthcare professionals to learn and connect. For more information, please download event flyer.
Understanding Specialty Dementias: Symptoms, Communication Practices and Resources
Understanding Specialty Dementias: Symptoms, Communication Practices and Resources
Join The Kensington White Plains and AFTD Ambassador Corey Esannason for an interactive presentation about Specialty Dementias such as Lewy Body, Frontotemporal Dementia and Vascular Dementia. Corey Esannason, is a Registered Yoga Teacher and an Ambassador with the Association For Frontotemporal Degeneration (AFTD). Corey’s mother was diagnosed with FTD in 2011. Her combined passion for moving…
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