What's New
Advancing Hope: Early-Career Awardees of AFTD Research Grants are Making Strides!
Did you know that AFTD currently has six active research grant programs funding FTD research at all stages, from discovery research to clinical trials? Three of these programs are focused…
AFTD Webinar: From Symptom Onset to Diagnosis — Improving the FTD Diagnostic Journey
FTD’s complex symptomology means it is often misdiagnosed. This webinar explores what we know about the diagnostic journey by reviewing current data from the FTD Disorders Registry, including common early…
AFTD Grantee Study Assesses Protein Changes Which Could Help Track FTD Severity
A study published in Nature Aging looked at a large number of proteins in cerebrospinal fluid (CSF) to see if combinations of changes in these proteins could be used for…
Late FTD Advocate Susan Suchan Spotlighted in New Documentary
Susan, a new full-length documentary about a woman diagnosed with FTD and the choices she and her family struggled with, is now available to stream. The film’s subject, Susan Suchan,…
Advancing Hope: AFTD Announces 2025 Holloway Fellowship Recipients
Made possible thanks to the generous support of the Holloway Family Fund, AFTD’s Holloway Fellowships support the next generation of FTD researchers by providing two years of funding for innovative projects…
Dear HelpLine: Resources for Genetic FTD
Dear HelpLine, I am 25 years old and I just learned my dad’s FTD is genetic. I’m planning to get married soon. Now that I know I may also be…
AviadoBio and Astellas Senior Staff Discuss ASPIRE-FTD Trial in Interview
AviadoBio CEO Lisa Deschamps and Astellas senior vice president Richard Wilson discussed the ASPIRE-FTD clinical trial for FTD-GRN, challenges with the development and potential distribution of the AVB-101 gene therapy,…
AFTD Founder Helen-Ann Comstock, 1933-2025
Helen-Ann Comstock, who founded AFTD in 2002 to ensure that no other family would have to endure FTD without adequate resources, information, and support, died on July 30. She was…
The Road to Timely and Accurate FTD Diagnosis
Accurate, early FTD diagnosis is crucial – for appropriate care, improved quality of life and disease management, adequate support for caregivers, better informed decisions around family planning, and access to…
August 23, 2025: In-Person Meet & Greet in Sparks, Nev.
AFTD Ambassador Scott Oxarart invites anyone impacted by FTD to join others on the FTD journey for a two-mile walk beginning at Nevada Veterans Memorial Plaza in Sparks (300 Howard…
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