What's New
Dignity Care as an Essential Dementia Guidepost
Dignity care is the practice of ensuring a loved one maintains a sense of self and self-respect. As she recounted in a recent AARP article, Lois Seed has guided every…
Advancing Hope: AFTD Staff Attend the Clinical Trials in Alzheimer’s Disease (CTAD) Conference
Dr. Penny Dack’s, AFTD’s Chief Scientific Officer and President of the FTD Disorders Registry, and Dr. Shana Dodge, AFTD’s Director of Research Engagement attend the Clinical Trials in Alzheimer’s Disease…
Honoring Lives Touched by FTD: The 2025 In-Memoriam Video
AFTD invites you to view our first In-Memoriam video, a heartfelt tribute honoring the lives of those we lost to FTD. This compilation features photographs shared by families across the…
Memory Care That May Slow Dementia Decline
Memory care snapshot: As Robin Latimer lined up her putt on the portable green at Alice’s Clubhouse, she cracked a joke that made everyone laugh. When the ball dropped, applause…
Advancing Hope: AFTD and partners Award $2.1 Million in New FTD Diagnostic Biomarkers Initiative
AFTD currently has six active research funding programs to support FTD research at all stages, from discovery research to clinical trials. The newest of these programs is the FTD Diagnostic…
From Sean 1.0 to Sean 2.0: One Couple’s FTD Journey
When Sean Durbin noticed he was struggling to find the right words during conversations, he knew something was off. The once-boisterous extrovert who thrived at the center of family gatherings…
Hope on the Horizon: Daniel Barvin’s Personal Mission to Transform FTD Treatment
In 2017, Daniel Barvin was newly married, MBA in hand, and building a promising career in wealth management at Morgan Stanley. Then came the diagnosis that would reshape everything: He…
FTD Science Digest: AFTD Research Priorities in 2026
As the new year begins, AFTD continues to implement a three-year strategic plan across five mission pillars. The research pillar strives to drive research to a cure and improve the quality of…
FTD Research Spotlight: AFTD Research Priorities in 2026
As the new year begins, AFTD continues to implement a three-year strategic plan across five mission pillars. The research pillar strives to drive research to a cure and improve the quality of…
Our Deepest Gratitude to Dr. Walter Koroshetz
The Association for Frontotemporal Degeneration extends its deepest gratitude to Dr. Walter Koroshetz for his 18 years of distinguished leadership of the National Institute of Neurological Disorders and Stroke (NINDS)…
