What's New
Former U.S. Rep. Wexton, Living with PSP, Featured in “Brain & Life” Magazine
Jennifer Wexton, a former member of Congress who stepped down after revealing her progressive supranuclear palsy (PSP) diagnosis, was featured on the cover of the April/May issue of Brain &…
Dear HelpLine: The GUIDE Model and FTD
Dear HelpLine, My neurologist’s office recently told me about something called GUIDE, for people with dementia. I’m wondering if this program could help with FTD. Where can I learn more? …
Genetic FTD Advocate Linde Jacobs Profiled in CBS Minnesota Segment
Linde Jacobs, a Minnesota nurse who has devoted herself to genetic-FTD advocacy after learning that she and her sisters share the same MAPT mutation that caused her mother’s FTD, was…
Millennial Whose Father Has PSP Explains the Challenges Faced by Millennial Caregivers
When Jennifer N. Levin’s father was diagnosed with progressive supranuclear palsy, she was only 32 and living across the country, working long hours at her job in the television industry.…
AFTD Ambassador Shares Husband’s FTD Journey with West Virginia Newspaper
In a May 21 article published in the Charleston Gazette-Mail, AFTD Ambassador Debbie Elkins detailed her family’s FTD journey following the diagnosis of her husband, Chuck. She recounted the first…
AFTD Medical Advisor Emeritus Virginia Lee Elected to National Academy of Sciences
Virginia M.-Y. Lee, PhD, an emeritus member of the AFTD Medical Advisory Council (MAC) and the current director of the University of Pennsylvania’s Center for Neurodegenerative Disease Research, was elected…
Emma Heming Willis Honored with Caregiving Award
Emma Heming Willis was recently honored by Maria Shriver’s Women’s Alzheimer’s Movement (WAM) at Cleveland Clinic, receiving the organization’s Caregiving Award for her “outstanding work in advocating for unpaid family…
Session Videos from AFTD’s 2025 Education Conference Now Available
Sessions from AFTD’s 2025 Education Conference are now available on our YouTube channel. Whether you missed a session, you weren’t able to join us live in Denver or virtually, or…
Study Identifies Profile of Blood-Based Inflammatory Proteins as Potential FTD Biomarker
A study published in the journal Brain earlier this year identified a profile of inflammation-related proteins that could potentially serve as a FTD biomarker gauging the severity of the disease.…
Tips & Advice – Navigating FTD-ALS
In 2011, researchers discovered that variants of the C9orf72 gene are the most common cause of both genetic FTD and amyotrophic lateral sclerosis (ALS). Nevertheless, it is important to recognize…
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