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Epilepsy More Common in FTD than Alzheimer’s, Study Finds
Epilepsy symptoms and the prescription of antiseizure medications are more common in FTD than Alzheimer’s disease, as reported in a study published in JAMA Neurology. The study sheds light on…
AFTD Webinar: The Lived Experience with FTD: The Road to an FTD Diagnosis
While awareness of FTD disorders is increasing, many people still face a lengthy and complicated path to receiving a diagnosis. In this webinar, presenters will share their personal journeys…
Advancing Hope – AFTD Staff Attend 2025 ALS Nexus in Dallas
Amanda Gleixner, PhD, attended the Amyotrophic Lateral Sclerosis (ALS) Nexus, held in Dallas, TX in August. The ALS Nexus is an annual conference hosted by the ALS Association which brings…
The Lived Experience of FTD: The Benefits of Pets
The following Guest Feature was written by Deb Jobe, a member of the AFTD Persons With FTD Advisory Council. Deb was diagnosed with the corticobasal syndrome (CBS) subtype of FTD, and eventually…
Dr. Laura Podcast Hosts AFTD’s Esther Kane
AFTD Director of Support and Education Esther Kane, MSN, RN-CDP, joined Dr. Laura Schlesinger this week on her podcast, Dr. Laura’s Deep Dive. Kane provided context and background on FTD…
Advancing Hope: AFTD Helps Organize C9orf72 Prevention Trial Workshop
A recent publication, Design considerations for C9orf72 disease prevention trials, arose from a two-day workshop that was led by Adam Boxer, MD, PhD, (UCSF) and Michael Benatar, MD, PhD, (University…
Dear Helpline: What Comes After an FTD Diagnosis?
When a doctor first says the words frontotemporal degeneration (FTD), everything changes. Some describe it as feeling like the ground drops out from under them — fear, grief, and endless…
Partners in FTD Care: Genetic FTD Trials Update – Approaching a Phase 3 Milestone
The FTD research landscape is on the verge of major developments. For the first time, a Phase 3 trial has been completed for a potentially disease-modifying treatment for genetic FTD,…
Comedian Shares Her FTD Caregiving Journey on Podcast
Obviously there’s nothing funny about an FTD diagnosis—even for someone who makes their living finding the humor in everyday life. But Kelsey Cook, a nationally touring comedian known for her…
People at Potential Risk of Developing FTD Share Views on Effects of Predictive Biomarker Testing
People at risk, or potentially at risk, of developing FTD from a genetic mutation shared their perspectives on the potential effects the results of predictive biomarker testing would have on…
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