What's New
Brain Donation is Final Gift of 24-Year-Old Diagnosed with FTD
Brain donation can be a selfless act born of tragedy. The story of Andre Yarham has captured the attention of media outlets across the United Kingdom, highlighting both the reach of FTD into young adulthood, and the…
Art as Hope: Emma Heming Willis Featured in CNN’s The Story Is with Elex Michaelson on FTD In the Arts
Art can reveal the “whole person” that lies beneath their infirmity or grief, said Emma Heming Willis, wife of Bruce Willis, last week. She was featured yesterday on CNN’s The…
Understanding the Path to an FTD Diagnosis
The FTD diagnostic journey currently averages 3.6 years. Being Patient recently highlighted the complexities surrounding FTD diagnosis, shedding light on why so many families face years of uncertainty before receiving…
Tips & Advice: Genetic Testing and FTD
A common question people may ask when a loved one is diagnosed with FTD, especially if there is a family history of dementia, is “Am I at risk too?” While…
AFTD Applauds House Appropriations Committees for Support of NIH, Dementia Research, and Family Caregivers in FY 2026 Labor-HHS Bill
The Association for Frontotemporal Degeneration (AFTD) thanks the House and Senate Appropriations Committees for its release of the Fiscal Year 2026 Labor, Health and Human Services, Education, and Related Agencies…
Genetic FTD News Drives an Artist to Pick Up Paintbrush Again
Genetic FTD can impact family members in sometimes beautiful ways. The Osage Oracle recently told the story of Iowan Alyssa Nash, a young artist who was found to have the…
Dignity Care as an Essential Dementia Guidepost
Dignity care is the practice of ensuring a loved one maintains a sense of self and self-respect. As she recounted in a recent AARP article, Lois Seed has guided every…
Advancing Hope: AFTD Staff Attend the Clinical Trials in Alzheimer’s Disease (CTAD) Conference
Dr. Penny Dack’s, AFTD’s Chief Scientific Officer and President of the FTD Disorders Registry, and Dr. Shana Dodge, AFTD’s Director of Research Engagement attend the Clinical Trials in Alzheimer’s Disease…
Honoring Lives Touched by FTD: The 2025 In-Memoriam Video
AFTD invites you to view our first In-Memoriam video, a heartfelt tribute honoring the lives of those we lost to FTD. This compilation features photographs shared by families across the…
Memory Care That May Slow Dementia Decline
Memory care snapshot: As Robin Latimer lined up her putt on the portable green at Alice’s Clubhouse, she cracked a joke that made everyone laugh. When the ball dropped, applause…
