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Researcher Discusses Integrating Genetic Testing Into Routine FTD/ALS Care in Podcast Interview
Offering genetic testing to persons diagnosed with FTD/ALS disorders should be a routine part of clinical care, Laynie Dratch, ScM, CGC, of Penn Medicine, said in a December 2023 interview…
Perspectives in FTD Research Webinar: Gene Therapy for FTD — What Do I Need to Know?
In the last several years, new clinical trials have begun for drugs that can potentially slow or stop the progression of FTD caused by specific genes. Gene therapy and gene…
February 24, 2024: Virtual Meet & Greet for Delray Beach, Fla. Area
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in and around Delray Beach, Florida on Saturday, February 24,…
March 2, 2024: Virtual Meet & Greet for Memphis, Tenn. Area
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in and around Memphis, Tennessee on Saturday, March 2, starting…
March 2, 2024: In-Person Meet & Greet in New Orleans, La.
Join and learn from others who understand the FTD journey at this virtual Meet & Greet event in New Orleans on Saturday, March 2, starting at 10:00 a.m. CT. The…
March 10, 2024: In-Person Meet & Greet in Sacramento, Calif.
Join and learn from others who understand the FTD journey at this AFTD Meet & Greet event, taking place in Roseville, California, outside Sacramento, on Sunday, March 10, starting at…
February 20, 2024: In-Person Meet & Greet in Tucson, Ariz.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Tucson, Arizona on Tuesday, February 20, starting at 1:00 p.m. MT.…
News Report on Tallahassee Couple’s FTD Journey Highlights Challenges of Misdiagnosis
A report aired by Tallahassee news station WTXL27 shares how FTD has affected the lives of a local couple. Larry Davis told reporter Maya Sargent that his FTD diagnosis and…
Volunteer Update: AFTD Ambassadors Welcome New Cohort
The AFTD Ambassador program was launched in 2019 as a new opportunity for AFTD’s volunteer leadership. Since then, the initial cohort of Ambassadors has grown into an enthusiastic, highly motivated…
Public Benefits When Notable Names Share Neurological Challenges, UCLA Professor Writes
In an opinion piece published last month in the Los Angeles Times, Keith Vossel, MD, of the University of California, Los Angeles, writes that celebrities and politicians who share their…
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