
degeneration of the frontal
and/or temporal lobes of the brain.




this journey alone.
and support for families facing FTD.





















News & Events
Cloudflare Co-Founder, Who Is Living with FTD, Profiled in WIRED
Lee Holloway, the young co-founder of the internet-security company Cloudflare who is living with behavioral variant FTD (bvFTD), is the subject of a feature article published April 15 in WIRED.…
MOREHandling COVID’s Unique Challenges for People with FTD and ALS/FTD
If you or a loved one are living with any form of FTD, or ALS with FTD, the COVID-19 pandemic now requires careful attention to two challenging situations: the FTD…
MOREWebinar: Coordinating and Managing FTD Care in a Changing World
Throughout April, AFTD will present a series of webinars reflecting material originally developed for the 2020 AFTD Education Conference, which was canceled due to the COVID-19 pandemic. In the…
MOREManaging FTD Care with Kids in the Home During the COVID-19 Pandemic: April 2020
The most common dementia under 60 can afflict people in their 40s, 30s, and even 20s. For too many, the challenges of living with FTD combine with the stresses of…
MOREWashington Post Highlights Challenges of FTD Care
In a personal and stark description of the difficulties of FTD caretaking, the Washington Post sheds light on the unique challenges of the disease and the impact on young couples…
MORECOVID-19, Hygiene and FTD
Hand-washing and hygiene are more important than ever due to COVID-19. But many of the symptoms of FTD as it progresses can make attentiveness to hygiene a challenge. The following…
MOREMaintaining an FTD Care Routine During the COVID-19 Pandemic
Individuals and families already dealing with the stress of FTD now face even greater uncertainty and isolation during the COVID-19 pandemic. While social distancing has been mandated to help contain…
MOREWebinar: Corticobasal Syndrome & Corticobasal Degeneration, Basics & What You Need to Know
In this AFTD Educational Webinar, Melissa Armstrong, MD, MSc, Associate Professor of Neurology at the University of Florida (Gainesville) provides an in-depth look at corticobasal syndrome and corticobasal degeneration.…
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