The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

September 25, 2025 | 12 p.m. ET

aftd helpline WEBINAR

The Lived Experience with FTD:

The Road to an FTD Diagnosis

13 Years of Food for Thought

Host an Event

Celebrate 13 years of turning meals into moments of awareness, connection, and hope.

Join us this September 21 – October 5

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Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

News & Events

How to Support AFTD’s Mission through Your Workplace

AFTD’s volunteers and donors are essential to advancing our mission. Each contribution of time and funds provides help and brings hope to all affected by FTD, and we are grateful…

Researchers at the Universities of Edinburgh and Oxford have found evidence that the drug terasozin could help prevent motor neuron death in people with ALS

Blood Pressure Medication Could Protect Against Motor Neuron Death in ALS

A joint study by the University of Edinburgh and University of Oxford has found that the drug terasozin shows potential as a treatment for ALS and other forms of motor…

Researchers at the University of Sydney have discovered that an abnormal protein could be a common link between forms of motor neuron disease

Study Finds Abnormal Protein that Could Be Common Link Between Forms of Motor Neuron Disease

A new study by researchers at the University of Sydney has uncovered an abnormal protein that could be a common link between the different forms of motor neuron disease (MND).…

Photo of residents sitting outside in a Dementia Village Care Facility

“Dementia Village” Care Facility Model Gives Residents More Freedom

A recent report by Vox featured a Dutch “dementia village” that gives residents a great deal of freedom in a carefully tailored, familiar-feeling setting. The Hogeweyk, located just outside Amsterdam…

Researchers in Germany have found remarkable simiarlities between bvFTD and schizophrenia

Study Finds Similarities Between bvFTD and Schizophrenia

A study recently published in JAMA Psychiatry revisited a 120-year-old theory on “premature dementia” and has discovered similarities and some degree of overlap between schizophrenia and behavior variant frontotemporal degeneration…

NIH Unveils Web Portal to Give Researchers Access to Stem Cell Lines for FTD

The National Institutes of Health’s Center for Alzheimer’s and Related Dementias (CARD) recently unveiled a new web portal to share stem cell lines used for the study of neurodegenerative conditions,…

Photo of dementia advocates Gwenda Darling and Kevyn Morris

Dementia Advocates Emphasize Importance of Early Diagnosis and Awareness

In a recent interview, two dementia advocates in Australia explained that while receiving an early dementia diagnosis is vital, dementia should not be used to define people. The duo —…

Bob Powers performed his one person show "Chasing Rainbows" in Portland in honor of his late husband, Donald, and to raise money for AFTD's mission

“Chasing Rainbows” Play Debuts in Portland, Raises Funds for AFTD’s Mission

Stage actor Bob Powers debuted his one-person play Chasing Rainbows: A Story of Love, Loss, and Finding Purpose with two performances on August 19 and 20 at the Coho Theater…

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