Advancing Hope: AFTD hosts FTD Social at the Society for Neuroscience Annual Meeting
The Society for Neuroscience (SfN), with nearly 35,000 members in 95 countries, is the world’s largest professional organization for brain researchers. SfN’s annual meeting provides a forum for scientists from around the globe to present the results of their research, discover new ideas, engage with colleagues, and learn about new tools and techniques they can…
Read MoreEditor Shares How Basketball Helps Him Bond with Friend Who Has PPA
Retired managing editor Lonny Cain of The Times (Ottawa, Ill.) shared in a recent article how basketball helps him communicate and continue to bond with his lifelong friend Randy, who is living with primary progressive aphasia (PPA). Cain notes that he can’t recall how the duo met, musing that Randy may have simply shown up…
Read More“We’re Just Regular People with an Illness,” Dementia Advocate with FTD Writes in Essay
In an essay published by Inside Ageing, Bobby Redman, a retired behavioral psychologist living with FTD, discusses the results of a survey by Dementia Australia. According to the survey, nearly one-third of Australians found persons living with dementia to be frightening. The figure increased from 23% over the last decade. Redman writes that, as a…
Read MoreVolunteer Update: Hosting a Meet & Greet Event
By hosting a Meet & Greet on behalf of AFTD, volunteers can bring together people affected by FTD in their local area and neighboring communities to share resources and support for the FTD journey ahead. At a November Meet & Greet hosted by AFTD Ambassador Sandra Gonzalez-Morett and AFTD volunteer Veronica Wolfe, attendees shared their…
Read MoreAdvancing Hope: AFTD Manager of Genetic Initiatives Attends National Society of Counselors Annual Education Conference
AFTD’ Manager of Genetic Initiatives Kim Jenny, MS, LCGC, attended the 2023 National Society of Genetic Counselors Annual Education Conference, which took place October 16-21. The conference kicked off with a symposium on ethical dilemmas that arise related to genetic counseling and genetic testing issues for FTD, ALS, and other neurodegenerative conditions, featuring a panel…
Read MoreJanuary 6, 2024: In-Person Meet & Greet in Leicester, Mass.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Leicester, Massachusetts on Saturday, January 6, starting at 10:30 a.m. ET. Email Dawn O’Gara at dogara@theaftd.org to RSVP. The event will take place from 10:30 – 11:30 a.m. at the Leicester Public Library (1136 Main Street).…
Read MoreLeicester, Mass. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Leicester, Massachusetts on Saturday, January 6, starting at 10:30 a.m. ET. Email Dawn O’Gara at dogara@theaftd.org to RSVP. In the case of inclement weather, this Meet & Greet will shift to Zoom; a link will be…
Read MoreAFTD Volunteer Highlights Differences Between FTD and Alzheimer’s in Newspaper Article
AFTD volunteer Wanda Smith highlighted the differences between FTD and Alzheimer’s disease in a recent article published by the San Diego Union-Tribune, sharing her experiences as a care partner for her mother, Sara Bridges, to illustrate how the diseases differ. Smith told the Tribune that one of the strongest initial signs she got that something…
Read MoreAFTD Webinar: Approaching a Cure — FTD Genetics and Clinical Trials
The landscape of FTD research has evolved tremendously over the last decade. FTD-causing genetic variants, and the mechanisms they disturb, offer a window to developing disease-modifying medications that target those mechanisms. For the first time, there are clinical trials testing interventions that have the potential to slow, or even stop, the progression of FTD. While…
Read MoreDear HelpLine: Connecting During Facility Visits
Dear HelpLine, My mom has FTD and lives in a facility, and I am struggling to find ways to connect with her when I visit. How can I make our visits more meaningful? Family members and friends often wonder how to make the most of facility visits. The personality and behavioral changes caused by FTD,…
Read More
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Polish 
Spanish (Spain)