News & Events
Guest Feature: That Picture, That Movie, That Song – Connecting with My Dad Beyond FTD
FTD can distort one’s personality and behavior in unpredictable and upsetting ways, and it can be hard to remember who they were. But often, the “true” self of the person…
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AFTD Webinar: Genetic FTD — To Test or Not to Test
The decision to learn one’s own genetic risk for developing FTD is highly personal. An individual’s test results may reveal information not only about their own status, but may shed…
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AFTD and Denali Therapeutics Discuss Takeda Pharmaceuticals Partnership to Develop FTD-Focused Therapeutic
Recently, members of the Denali Therapeutics team provided insights into their work and partnership with Takeda to develop a therapeutic to treat FTD-GRN (Frontotemporal Dementia caused by GRN gene mutation)…
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Study Evaluates the Feasibility of ALLFTD’s Mobile App to Collect FTD Diagnostic Data
A study published in the journal Alzheimer’s and Dementia evaluates whether a mobile app developed by the multi-site FTD research consortium ALLFTD can help users record and transmit scientifically acceptable…
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STAT Article Explores the Connection Between FTD and Visual Creativity
An article published by STAT explores the connection between the onset of FTD and a spike in visual creativity that a small percentage of people with the disease experience. The…
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Advocacy Update: AFTD Ambassadors Offer Insights at July NAPA Meeting
At the most recent meeting of the National Alzheimer’s Project Act (NAPA) Advisory Council, AFTD Ambassadors Katie Zenger and Terry Walter shared their experiences to help educate federal officials on the needs and concerns…
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Recent CBS Report Discusses Link between FTD and Creativity with Dr. Bruce Miller
A report recently aired by KPIX in San Francisco highlights the spike in creativity that has been observed in a small percentage of people with FTD. Bruce Miller, MD, of…
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Wall Street Journal Article Shares Story of Doctor’s Five Years of FTD Uncertainty
An article published in the Wall Street Journal shares the difficult journey former gynecologist Dr. Seth L. Stern faced in seeking a diagnosis for FTD, highlighting the many obstacles to…
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