The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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Action

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

advocacy update sen cleare FTD talk image

Advocacy Update: AFTD Board Members and CEO Help BEYONDD Study Secure Partnership of New York State Sen. Cordell Cleare

AFTD CEO Susan L-J Dickinson and Board members Donald E. Newhouse and Kathy Newhouse Mele helped to secure the partnership of New York State Senator Cordell Cleare for a study…

Dr. Murray Grossman, 1952-2023

Murray Grossman, MDCM, EdD, an internationally recognized leader in FTD science and a founding member of AFTD’s Medical Advisory Council (MAC), died on April 4, the Penn Memory Center announced…

AFTD Volunteers Share FTD Insights with Being Patient Live Talk

AFTD volunteer Katie Brandt and AFTD Medical Advisory Council chair Brad Dickerson, MD, were featured in a recent edition of Being Patient Live Talk. Brandt and Dr. Dickerson spoke with…

bvFTD care partner perspective study image

Study Examines the Care Partner’s Perspective on bvFTD Symptoms

A study published in the medical journal Psychogeriatrics examines the perspective of care partners on symptoms of behavioral variant frontotemporal degeneration (bvFTD). One of bvFTD’s most common symptoms is anosognosia,…

Study Identifies Plasma Biomarkers That Can Discriminate Forms of FTD Caused by TDP-43 and Tau

A recent study by a team of researchers at the University of Pennsylvania has identified biomarkers that can be used to discriminate between forms of FTD caused by the abnormal…

Help & Support: Guidance for Advance Care Planning

Completing advance care planning documents such as living wills, healthcare advance directives, or healthcare power of attorney is a task many tend to put off. Discussions around advance care planning…

CSF leak causing bvFTD like condition image

Condition with bvFTD-Like Symptoms Can Be Treated with Surgery, Study Says

According to a recent study published in Alzheimer’s & Dementia: Translational Research & Clinical Interventions, a condition with symptoms identical to those of behavioral variant frontotemporal degeneration (bvFTD) can be…

Machine-Learning Algorithms Can Recognize Rare Dementias Such as FTD, Study Finds

A study published in the Neuroimage: Clinical medical journal found that machine-learning algorithms are capable of recognizing patterns of atrophy associated with rarer neurodegenerative diseases such as FTD. Conducted by…

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