AFTD Care Partner Learning Series Webinar: Navigating the Holidays with an FTD Diagnosis
The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences. In this webinar, AFTD HelpLine Manager Stephanie Quigley leads a discussion with members of AFTD’s Persons with FTD Advisory Council as they share ideas and…
Read MoreAFTD Advocacy: State Resolution Training
This training will cover the process of how to obtain a resolution — from identifying your legislators to receiving your approved resolution. It will also cover press strategies to maximize visibility and foster more awareness for FTD in your state. Attendees will receive and review the: 2025 Resolution Toolkit Resolution language Press toolkit Advocacy talking…
Read MoreYoung Caregiver Talks About Finding Support Amid FTD Journey on Dementia UK Podcast
A young FTD caregiver named Lizzie discussed the grief, uncertainty, and unexpected responsibilities she faced as she cared for her father — all while navigating the natural changes of young adulthood — in a recent interview with “My Life With Dementia,” a podcast produced by the organization Dementia UK. When Lizzie graduated from college, she…
Read MorePerspectives in FTD Webinar: FTD Research 2024 — Where We’ve Come From and Where We’re Headed
The science of FTD is evolving at a rapid pace and it can be difficult to interpret the scientific advancements and how they may impact families facing an FTD diagnosis. In this Perspectives in FTD Research webinar, presented jointly by AFTD and the FTD Disorders Registry, AFTD’s Senior Director of Scientific Initiatives, Penny Dacks, PhD,…
Read MoreAFTD Webinar: Care Partner Learning Series — Navigating the Holidays with an FTD Diagnosis
The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences. Please join AFTD HelpLine Manager Stephanie Quigley and members of the Persons with FTD Advisory Council as they share ideas and ways they have adapted…
Read MoreAdvancing Hope: AFTD Staff Attend NORD Breakthrough Summit in Washington, DC
Shana Dodge, PhD, AFTD’s Director of Research Engagement and Meghan Buzby, MBA, AFTD’s Director of Advocacy and Volunteer Engagement attended the National Organization for Rare Disorders (NORD) Breakthrough Summit, held October 20-22 in Washington, DC. NORD is an advocacy organization dedicated to individuals with rare diseases and is committed to the identification, treatment, and cure…
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