The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Dear HelpLine – Support for Veterans

Dear HelpLine, My loved one is a veteran. Do we qualify for any support? Navigating the Department of Veterans Affairs, and the benefits you or your loved one might be…

Provide Help and Bring Hope with a Year-End Gift

AFTD was founded more than 20 years ago with a single donation. Since then, the dedication and generosity of our volunteers, donors, and partners have enabled us to better meet…

AFTD Ambassador Shares Challenges of Being a Long-Distance Care Partner in Interview

AFTD Ambassador Melissa Fisher shared the realities of being a long-distance care partner in an interview published by GoodRx Health. Fisher joined two other long-distance care partners who have loved…

AviadoBio Therapy Clinical Trial - FB LI TW

FDA Clears Way for Clinical Trial for AviadoBio Therapy That Could Halt FTD Progression

AviadoBio will soon open U.S. clinical trial sites for an experimental gene therapy that could halt the progression of FTD when caused by a variant in the GRN gene, the…

AFTD Update: Updated Digital Resources for FTD & Genetics

The FTD & Genetics section of AFTD’s website has been newly updated to help families better understand FTD’s genetic risk and the options available for addressing it. Approximately 40% of…

Landmark Trial Evaluating Potential FTD-GRN Therapeutic Completes Enrollment

Biotechnology company Alector Therapeutics announced on October 27 that it has completed enrollment for INFRONT-3, a Phase 3 clinical trial testing the safety and efficacy of the drug latozinemab as…

The Lived Experience of FTD: Anosognosia

The following article was written by Kevin Rhodes, a member of AFTD’s Persons with FTD Advisory Council. Council members like Kevin and Anne Fargusson, who contributed to this article, work…

AFTD Webinar: Grief, Loss, and Hope — Helping Families Living with FTD

FTD is the most common dementia for people under 60, and often occurs when there are teens or young adults still at home. An FTD diagnosis can bring feelings of…

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