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  • WHAT IS FTD?
        • Disease Overview
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          • Primary Progressive Aphasia (PPA)
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          • Progressive Supranuclear Palsy
          • Corticobasal Syndrome
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aftd-logo
  • WHAT IS FTD?
    • Disease Overview
      • Behavioral Variant FTD
      • Primary Progressive Aphasia (PPA)
      • FTD-ALS
      • Progressive Supranuclear Palsy
      • Corticobasal Syndrome
    • FTD & Genetics
    • Find a Medical Center
    • FAQs
    • Glossary of FTD Terms
  • FIND SUPPORT
    • AFTD HelpLine
    • Find Support Near You
    • Newly Diagnosed
    • Managing FTD
      • Coordinating Care
      • Support for People with FTD
      • Support for Kids and Teens
    • Planning for Legal, Financial, and Health Insurance Issues
    • Resources
  • RESEARCH
    • Ways to Participate
    • Studies Seeking Participants
    • FTD Disorders Registry
    • For Researchers
  • GET INVOLVED
    • Ways to Give
    • Host an Event
    • Volunteer With Us
    • Be an Advocate
    • Calendar of Events
  • HEALTH PROFESSIONALS
    • Diagnosing FTD
    • Treating FTD
    • Partners in FTD Care
    • Healthcare Webinars
  • ABOUT US
    • Mission, Vision & Values
    • AFTD is Hiring
    • Our History
    • Staff
    • Board of Directors
    • Medical Advisory Council
    • Persons With FTD Advisory Council
    • AFTD Ambassadors
    • Strategic Plan
    • Financial and Impact Reports
  • NEWSROOM
    • News
      • FTD in the News
      • Events
      • Press Releases
      • Videos
      • Webinars
    • Publications
      • AFTD Insights
      • Help & Hope
      • Partners in FTD Care
    • Media
      • Contact our Newsroom
  • Search

Empower Help & Hope this #Giving Tuesday

By Mike Mooney | November 28, 2024 | 0

Michele Howerter, whose mom Nancy is living with primary progressive aphasia, is sharing her family’s story for Giving Tuesday – a day to recognize and support mission-focused organizations worldwide. AFTD…

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Advancing Hope: Sponsored Testing Programs; opportunities for no-cost genetic testing

By Mike Mooney | November 28, 2024 | 0
Text: Advancing Hope - Sponsored Testing Programs; opportunities for no-cost genetic testing. Background: A doctor consults with a patient

Once you have chosen to pursue genetic testing, it can be frustrating to learn that the cost is too high, or insurance will not cover genetic testing. Sponsored testing programs…

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Ferrer Doses First Participant in Phase 2 Study for PSP Treatment

By Mike Mooney | November 27, 2024 | 0
Text: Ferrer Doses First Participant in Phase 2 Study for PSP Treatment. Background: A person pours pills into another person's hand.

Pharmaceutical company Ferrer announced that it has dosed the first participant in the PROSPER phase 2 clinical trial for an experimental treatment for progressive supranuclear palsy. The ongoing trial seeks…

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Persons with FTD Advisory Council Special Article: Holiday Madness

By Julie Sullivan | November 26, 2024 | 0
Persons with FTD Advisory Council Special Article: Holiday Madness Photo of Cindy Odell smiling and wearing a gray, charcoal, black, red, and burgundy sweater.

This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can…

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All in the Family to end FTD: Colonial Electric’s Food for Thought Event Clears More than $1 Million Since Inception

By Julie Sullivan | November 22, 2024 | 0
Patricia "Trish" Bellwoar, who had FTD, smiles as she sits in a wheelchair being pushed by her husband, Joseph Bellwoar.

AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD…

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A Conversation with a Neurologist at Denali Therapeutics

By Matt Ozga | November 22, 2024 | 0
Graphic: A Conversation with a Neurologist at Denali Therapeutics. Background: A photo of Dr. Richard Tsai

Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat…

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