Penn FTD Center Annual Familial Conference: Uncovering the Genetics of FTD/ALS
AFTD is a bronze-level sponsor of the 2025 Penn FTD Center Annual Familial Conference, which will focus on the genetics of FTD/ALS. It will address topics for people living with,…
Read MoreFrontotemporal Lobar Degeneration: Moving Forward
Frontotemporal dementias are less well known than Alzheimer’s disease but account for over half of the cases of dementia in people younger than 65 years. The last few years have…
Read MoreThe Lived Experience of FTD: Managing the Emotional Impact of Job Loss in FTD
When someone is diagnosed with FTD, it is almost guaranteed that they will eventually have to leave their job, usually long before they are ready to do so. The abrupt…
Read MoreRemember Me Podcast Discusses Grief with AFTD Staff in Recent Episode
In a special bonus episode of the “Remember Me” podcast, AFTD Support & Education Director Esther Kane, MSN, RN-CDP, and Support Services Manager Sarah Lopata, MS joined hosts Rachael Martinez…
Read MoreAFTD Healthcare Professional Webinar: At the Intersection of FTD and the Law
FTD can present with executive dysfunction, impulsivity, loss of empathy, apathy and disinhibition. At times, these symptoms can lead to interactions with police, whether responding to an incident at…
Read MoreAFTD Webinar: Paving the Path Forward — Advancing AFTD’s Public Policy Priorities
Families living with FTD have significant unmet needs: access to quality dementia care, policies that are friendlier to unpaid caregivers, and a deeper public investment into disease-modifying treatments. In this…
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