The Lived Experience of FTD: Frustrations of FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council work to share the insights of persons diagnosed to help guide AFTD on its mission for a future free of FTD. FTD can be incredibly challenging for both individuals with the condition and their loved ones. Some common…
Read MoreFTD Advocate Discusses Isolation and Housing Concerns Faced by Family Care Partners
In a column published by the digital periodical Next Avenue, FTD advocate Aisha Adkins, MPA, CNP, discusses how care partners and people living with conditions like FTD often face overlapping hardships from loneliness and housing insecurity. The financial impact of having a loved one diagnosed with a condition like cancer or dementia can put a…
Read MoreFirst Participant Treated in AviadoBio Phase 1/2 Clinical Trial for FTD-GRN Gene Therapy
AviadoBio announced on April 15 that the first participant has been treated in its Phase 1/2 ASPIRE-FTD trial evaluating the gene therapy AVB-101 as an intervention for FTD-GRN. “There is a critical need for new treatments for people living with FTD-GRN,” said AviadoBio chief medical officer David Cooper, MD. “The lack of effective disease-modifying treatments…
Read MoreAFTD’s 2024 Driving Hope Golf Tournament (CO)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive course, and spread FTD awareness by joining AFTD’s 2024 Driving Hope Golf Tournament on August 11th at the Colorado National Golf Club in Erie, CO! Tickets are available for single golfers, foursomes, and dinner/drinks only guests. There are also multiple sponsorship opportunities…
Read MoreAFTD’s 2024 Driving Hope Golf Tournament (NY)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive private course, participate in a tennis tournament, and spread FTD awareness by joining AFTD’s 2024 Driving Hope Golf Tournament on September 16th at the Metropolis Golf Club in White Plains, NY! Tickets are available for single golfers, foursomes, and reception only guests.…
Read MoreTips & Advice: Roaming vs. Wandering
In FTD, “roaming” refers to a form of compulsive behavior that presents as walking, biking, or driving the same route repeatedly. While their lengths may vary, the distance of these compulsively traveled routes can be significant. Roaming isn’t to be confused with “wandering,” a behavior more common in Alzheimer’s disease. Wandering occurs when someone with…
Read MoreNot All Forms of PPA Are FTD, as Recent High-Profile Case Highlights
Not all forms of primary progressive aphasia (PPA) are caused by the same disease pathology with logopenic variant PPA (lvPPA) capable of being associated with either FTD or Alzheimer’s disease. This distinction was recently highlighted by the journey of lauded playwright Christopher Durang, who passed away from complications of lvPPA on April 2. Durang made…
Read MoreMay 22, 2024: In-Person Meet & Greet in Bristol, Pa.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Margaret R. Grundy Memorial Library in Bristol, Pa., located at 680 Radcliffe Street. RSVP by filling out this form. The event will take place on Wednesday, May 22, from 6:00 to 7:30 p.m. Download this…
Read MoreBristol, Pa. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Margaret R. Grundy Memorial Library in Bristol, Penn., located at 680 Radcliffe Street. RSVP by filling out this form. You can also download this flyer to learn more.
Read MoreUnidos en el camino: reunión de personas confrontando la demencia frontotemporal
Únase y aprenda de otras personas que entienden y han vivido el camino difícil de la DFT (degeneración frontotemporal) en este evento virtual para personas de todas partes de los EE. UU. Este evento es específicamente para personas hispanohablantes y las dificultades que la comunidad latina pueda encontrar en particular aquí en este país. Les…
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