The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Thursday, July 31, 2025
3:00 - 4:00 p.m. ET

How to Connect with Legislators and Create Change

AFTD advocacy webinar

Sharing Your Story to Make a Difference:

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Passage Bio Announces Hopeful Initial Data from Phase 1/2 Clinical Trial

Passage Bio released promising preliminary results from its phase 1/2 clinical trial evaluating an experimental treatment for FTD cases caused by a GRN genetic mutation (FTD-GRN). The “upliFT-D” trial is…

Tips & Advice: Navigating Apathy in FTD

A hallmark symptom of FTD, apathy can be particularly hard to deal with for persons diagnosed, care partners, and family members. Apathy manifests as an apparent loss of interest in…

Advancing Hope: AFTD hosts FTD Social at the Society for Neuroscience Annual Meeting

The Society for Neuroscience (SfN), with nearly 35,000 members in 95 countries, is the world’s largest professional organization for brain researchers. SfN’s annual meeting provides a forum for scientists from…

Editor Shares How Basketball Helps Him Bond with Friend Who Has PPA

Retired managing editor Lonny Cain of The Times (Ottawa, Ill.) shared in a recent article how basketball helps him communicate and continue to bond with his lifelong friend Randy, who…

“We’re Just Regular People with an Illness,” Dementia Advocate with FTD Writes in Essay

In an essay published by Inside Ageing, Bobby Redman, a retired behavioral psychologist living with FTD, discusses the results of a survey by Dementia Australia. According to the survey, nearly…

Volunteer Update: Hosting a Meet & Greet Event

By hosting a Meet & Greet on behalf of AFTD, volunteers can bring together people affected by FTD in their local area and neighboring communities to share resources and support…

February Help & Hope_ Help & Support - WEB FB LI TW

Advancing Hope: AFTD Manager of Genetic Initiatives Attends National Society of Counselors Annual Education Conference

AFTD’ Manager of Genetic Initiatives Kim Jenny, MS, LCGC, attended the 2023 National Society of Genetic Counselors Annual Education Conference, which took place October 16-21. The conference kicked off with…

AFTD Volunteer Highlights Differences Between FTD and Alzheimer’s in Newspaper Article

AFTD volunteer Wanda Smith highlighted the differences between FTD and Alzheimer’s disease in a recent article published by the San Diego Union-Tribune, sharing her experiences as a care partner for…

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