Genetic FTD Advocate Linde Jacobs Profiled in CBS Minnesota Segment
Linde Jacobs, a Minnesota nurse who has devoted herself to genetic-FTD advocacy after learning that she and her sisters share the same MAPT mutation that caused her mother’s FTD, was…
Read MoreMillennial Whose Father Has PSP Explains the Challenges Faced by Millennial Caregivers
When Jennifer N. Levin’s father was diagnosed with progressive supranuclear palsy, she was only 32 and living across the country, working long hours at her job in the television industry.…
Read MoreAFTD Ambassador Shares Husband’s FTD Journey with West Virginia Newspaper
In a May 21 article published in the Charleston Gazette-Mail, AFTD Ambassador Debbie Elkins detailed her family’s FTD journey following the diagnosis of her husband, Chuck. She recounted the first…
Read MoreAFTD Medical Advisor Emeritus Virginia Lee Elected to National Academy of Sciences
Virginia M.-Y. Lee, PhD, an emeritus member of the AFTD Medical Advisory Council (MAC) and the current director of the University of Pennsylvania’s Center for Neurodegenerative Disease Research, was elected…
Read MorePartners in FTD Care – A Lack of Empathy and Emotional Connection: A Common Symptom of FTD
Providing care for someone living with a condition as complex as FTD poses physical and mental challenges to both professional and family caregivers. In many cases, maintaining a fond emotional…
Read MoreAFTD Healthcare Professional Webinar: Speech Language Therapy — A Promising Practice in FTD Treatment and Care
When patients lose the ability to communicate effectively, doctors and other clinicians often refer them to a speech language pathologist (SLP) to help them regain their speaking skills. But for…
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