The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

AFTD CEO
Susan Dickinson to Retire in May 2026

Read More View Job Posting

AFTD Board Leading Search for Successor

Supporting FTD Care Partners with Individual Therapy:

HEALTHCARE PROFESSIONAL WEBINAR

Approaches and Key Considerations

CEC credit available for viewing the live webinar

Tuesday, November 18, 2025
12-1 p.m. EST

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

News & Events

FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research

An article published in the journal Alzheimer’s & Dementia identifies gaps in current FTD research caused by disparities in access to proper dementia care and research centers, and outlines ways…

Text: FTD and Intimacy, by Anne Fargusson, RN | Background: A couple holds hands while they have a discussion

The Lived Experience of FTD: FTD and Intimacy

In the following article, Anne Fargusson, RN, a member of the Persons with FTD Advisory Council, writes about intimacy and FTD. Intimacy can be an uncomfortable word. Years ago, when…

Vesper Trial Enters Phase IbIIa - FB LI TW

Vesper Bio Clinical Trial for FTD-GRN Enters Phase Ib/IIa

Danish biotechnology company Vesper Bio announced in January that its clinical trial for a potentially disease-modifying drug for FTD-GRN is proceeding to phase Ib/IIa. In FTD caused by an inherited…

Dear HelpLine: Home and Community Care Options

Dear HelpLine, My spouse has FTD. I have been caring for them in our home, and I’ve reached the point where I need more help. But I don’t even know…

Partners in FTD Care: Identifying and Describing Communication Difficulties Across the FTD Spectrum

Communication is a cornerstone of human interaction, enabling the exchange of ideas, the formation of connections, and the capacity to engage with new information. At its core, communication begins with…

Text: Managing the Emotional Impact of Job Loss in FTD by Kevil Rhodes, Co-Chair, AFTD Persons with FTD advisory Council | Background: A photo of AFTD Advisory Council Co-Chair Kevil Rhodes

The Lived Experience of FTD: Managing the Emotional Impact of Job Loss in FTD

When someone is diagnosed with FTD, it is almost guaranteed that they will eventually have to leave their job, usually long before they are ready to do so. The abrupt…

Remember Me Podcast Discusses Grief with AFTD Staff in Recent Episode

In a special bonus episode of the “Remember Me” podcast, AFTD Support & Education Director Esther Kane, MSN, RN-CDP, and Support Services Manager Sarah Lopata, MS joined hosts Rachael Martinez…

AFTD Webinar: Paving the Path Forward — Advancing AFTD’s Public Policy Priorities

Families living with FTD have significant unmet needs: access to quality dementia care, policies that are friendlier to unpaid caregivers, and a deeper public investment into disease-modifying treatments. In this…

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