Advancing Hope: AFTD Attends 2024 Society for Neuroscience Meeting
Dr. Nicole Bjorklund, AFTD Director of Research and Grants, and Dr. Kate Still, Research Outreach Manager, attended the Society for Neuroscience meeting in October to take in the latest research relevant to FTD. The conference convened more than 30,000 neuroscientists worldwide. Dr. Bjorklund and Dr. Still made new connections by hosting the 8th annual FTD…
Read MoreNew York Software Company Awards AFTD Gift to Honor Employee’s Late Cousin
AFTD has been selected as one of three organizations to receive a gift from Mindex, a software-development company in Rochester, N.Y., in honor of the latter’s 30th anniversary charity initiative. The company raised more than $3,300 for AFTD. Mindex employee Kelsey Kolar nominated AFTD in memory of her late cousin, Billy, who developed FTD in…
Read MoreTransposon Presents Results from Successful Phase 2 ALS/FTD Clinical Trial
Biotechnology company Transposon Therapeutics presented the results from its successful phase 2 clinical trial of its experimental medication for ALS/FTD at the 35th International Symposium on ALS/MND. The trial of the drug TPN-101 concluded in July, with the company sharing its data at conferences as it prepares for the next phase of clinical testing. ALS…
Read MoreAviadoBio CEO Emphasizes Collaborative Approach for Treating FTD
In October, U.K.-based gene therapy company AviadoBio, Ltd., and pharmaceutical company Astellas announced an exclusive option and license agreement for an investigational therapeutic, AVB-101, which is currently in a Phase 1/2 trial for people with FTD-GRN. AFTD recently spoke with AviadoBio Chief Executive Officer Lisa Deschamps about her colleagues’ work and vision for a collaborative…
Read MoreJanuary 11, 2025: In-Person Meet & Greet in Middlesex, N.J.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Norma Edom and AFTD Ambassador Sandra Gonzalez-Morett at the Middlesex Public Library (1300 Mountain Avenue). The event will take place from 10:30 a.m. to 12:30 p.m. on January 11, 2025. RSVP for this…
Read MoreIn-Person Meet & Greet in Middlesex, N.J.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Norma Edom and AFTD Ambassador Sandra Gonzalez-Morett. RSVP for this event by emailing Norma at nedom@optonline.net. To learn more, download this flyer.
Read MoreDear HelpLine: Types of FTD
Dear HelpLine, My mom was recently diagnosed with FTD, and when I visited your website, I learned that there are several types of FTD. My mom wasn’t diagnosed with a specific type. Can you help me understand the different types? Understanding the terminology and types of FTD can be confusing, especially if you do not…
Read MoreAdvancing Hope: AFTD Develops New Gene Therapy Resource
There is more hope now than ever before that researchers will be able to develop a treatment for FTD. Much research is underway to understand FTD better, treat the symptoms, or change the course of the disease. AFTD and the FTD Disorders Registry want to help you better understand the types of potential therapies that…
Read MoreJanuary 6, 2025: National Virtual Meet & Greet
Join this first-ever national Meet & Greet event specifically for people living with FTD. This virtual event will be held over Zoom on January 6 from 7-8 p.m. ET, and will be co-hosted by AFTD volunteer Dorothy Pearman and AFTD Ambassador Jackie Shapiro. Register by clicking here. To learn more, download this flyer.
Read MoreNational Virtual Meet & Greet – January 2025
Join this first-ever national Meet & Greet event specifically for people living with FTD. This virtual event will be held over Zoom and will be co-hosted by AFTD volunteer Dorothy Pearman and AFTD Ambassador Jackie Shapiro. Register by clicking here. To learn more, download this flyer.
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