The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Thursday, July 31, 2025
3:00 - 4:00 p.m. ET

How to Connect with Legislators and Create Change

AFTD advocacy webinar

Sharing Your Story to Make a Difference:

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Bishop Family Tells FTD Story

Sue and Bill Bishop spoke with counselor/writer Daniel Vance about their son’s struggle with FTD in August 2012. Vance’s column is published by more than 260 newspapers around the country. …

FTD Support Group to Walk for AFTD

Mike Kipp, whose wife Carole passed away from FTD, will walk with his team–A Stolen Life–comprised of several members of his FTD support group in Washington state on September 22…

1st Annual Golf Benefit Honoring Cheryl Whitcomb

On Sunday, September 2, 2012, the family of Cheryl Whitcomb will host a golf outing at St. Denis Golf Course in Chardon, OH. Ten percent of the proceeds benefits AFTD.…

2nd Annual Al McNulty Benefit for Dementia Research – Sept. 15

Joel McNulty and Paddy O’Shays in Overland Park, KS will host the 2nd Annual Al McNulty Benefit for Dementia Research on September 15 at 7 p.m. There will be a…

ALS Association and AFTD – C9orf72 Symposium

On October 15, 2012, the ALS Association and AFTD will host an evening symposium at the Society for Neuroscience Annual Meeting in New Orleans, LA. A one-page research abstract is…

AFTD Education Conference and Annual Meeting 2013

April 12, 2013 – AFTD will hold its education conference and annual meeting in Salt Lake City, UT on Friday, April 12, 2013. More details can be found on the…

AFTD Care & Cure 10th Anniversary Event

In 2012, AFTD celebrated 10 years of dedication to finding care and a cure for FTD! Event details were listed here.

The Association for Frontotemporal Degeneration offers modest financial assistance for caregivers interested in attending an FTD caregiver conference. The grants may be used to defray the cost of travel, lodging,…

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