
degeneration of the frontal
and/or temporal lobes of the brain.




this journey alone.
and support for families facing FTD.





















News & Events
University of Pennsylvania Caregiver Conference
The University of Pennsylvania is hosting its Frontotemporal Degeneration Caregiver Conference on Friday, June 7, 2013. The conference is open to anyone with an interest in FTD and will cover…
MORE5000 and Counting – FTD Forum Passes Milestone
The FTD Support Forum (http://ftdsupportforum.com) has just registered its 5,000th new member worldwide since being established in January, 2008. This online support forum provides safe and secure communications for people…
MOREFree Webinar – Affirm Yourself for Caregiver Challenges – 5-Part Series
March 28th – Free Webinar by Janet Edmundson, M.Ed. – Affirm Yourself for Caregiver Challenges (1st of 5-part series) For information and to register, click here.
MOREDISCOVERY 2013: 28th Annual Alzheimer’s Regional Conference
On April 5, 2013, the Alzheimer’s Association will hold their 28th Annual Alzheimer’s Regional Conference in Seattle. This year’s conference will feature a session dedicated to FTD, including discussions on the…
MORELittle Known FTD Steals Life, Dignity
AFTD supporter and FTD caregiver Anna Hill spoke to the Hartsville Messenger in South Carolina about her husband’s battle with FTD and the fundraising event held in his memory. Click…
MOREAFTD Partners with Whitehead Institute for 2013 Rare Disease Forum
On February 28, representatives of AFTD will attend the 2013 Rare Disease Forum, hosted by the Whitehead Institute in Cambridge, MA. AFTD has partnered with the Institute along with a…
MOREResearch Findings: Memantine Proves Ineffective as FTD Treatment
Dr. Adam Boxer of UCSF led a study on the effectiveness of memantine on people affected with FTD. Click here for the results of the study’s findings.
MOREFTD Family Caregiver Workshop in Concord, NC – March 3, 2013
Alzheimer’s North Carolina will present an FTD Family Caregiver Workshop with presenter Dr. Don Schmechel, a neurologist at Southeastern Neurology and Memory Care. Sunday, March 3, 2013 2 – 4…
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