2025 Austin Marathon
Join select AFTD staff and members of the local community at the 2025 Austin Marathon as we bring greater FTD awareness to the surrounding Austin area and raise funds to help people affected by FTD. The AFTD-Team will participate in the Austin Marathon on February 16, as an Official Charity Team. We hope you’ll join…
Read More4th Annual Babson Basketball Fundraiser Game
Spencer Cline and the Babson Men’s Basketball Team are hosting the 4th Annual Babson Basketball Fundraiser Game on Saturday, January 25, 2025. In the past three years, the team has raised nearly $27,000 in support of AFTD’s mission in memory of Spencer’s father, Lawrence, who was diagnosed with FTD at the age of 50.
Read MoreAFTD Advocacy Webinar: Paving The Path Forward — Advancing AFTD’s Public Policy Priorities
Families living with FTD have significant unmet needs: access to quality dementia care, policies that are friendlier to unpaid caregivers, and a deeper public investment into disease-modifying treatments. In this webinar, the AFTD advocacy team and experts at the Washington, DC lobbying firm Innovation Policy Solutions will explain how you can advance these and other…
Read MoreAFTD 2025 Education Conference – Denver, CO and via Zoom
The AFTD 2025 Education Conference is coming to the Omni Interlocken Hotel on May 1-2, 2025! People diagnosed, care partners, families, friends, healthcare professionals, and researchers are invited to connect with people who understand the journey, learn about available resources and supports, and engage with experts to gain insight on the latest in FTD research and approaches to care. On Thursday, May 1,…
Read MoreJanuary 25, 2025: Virtual Meet & Greet for MT, WY, ND, and SD
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Montana, Wyoming, North Dakota, and South Dakota. The event will take place from 11:00 a.m. to 12:00 p.m. MT on Saturday, January 25, 2025. RSVP for this event by emailing event host Susan Meagher…
Read MoreCan a Tau PET Tracer Aid FTD Diagnosis? Study Explores How Tracer Performs in Other Tauopathies
A study published in Science Translational Medicine explores how well the brain imaging tau PET tracer F-MK-6240 (flortaucipir) captures the presence of underlying protein clumps seen in post-mortem Alzheimer’s tissue. It explores how effectively the tracer could be used to recognize early stages of Alzheimer’s disease and detect a similar but separate disorder called primary…
Read MoreHelp & Hope in Review: The Top Articles of 2024
AFTD is committed to ensuring Help & Hope delivers informative articles and practical resources to ease your family’s FTD journey. Each year, we look back through our archives to see which features resonated most with you, and we share them again. To see more content, we encourage you to look through the Help & Hope archive on…
Read MoreDear HelpLine: The Differences Between Clinical Research and Clinical Medical Care
Dear HelpLine, I have FTD and have enrolled in a research study at a major medical center. My care partner and I travel to the site twice a year and get to see experts in FTD while we’re there. Do I still need to see a neurologist in my community? It is understandable to want…
Read MoreLinde Jacobs Shares Her Family’s FTD Journey with the New York Times
A recent article in The New York Times highlights the inspiring story of Linde Jacobs, a nurse and advocate carrying a genetic frontotemporal degeneration (FTD) variant. Her journey exemplifies the resilience and determination needed to confront the challenges of living with a known FTD-causing gene while striving to make a difference for others. Linde carries…
Read MoreVirtual Meet & Greet for MT, WY, ND, and SD
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Montana, Wyoming, North Dakota, and South Dakota on Saturday, January 25, starting at 11:00 a.m. MT. RSVP for this event by emailing event host Susan Meagher at suselenae@gmail.com. To learn more, download this flyer.
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