Ohio Care Partner Shares Story to Help Others on the FTD Journey

Ohio Care Partner Shares Story to Help Others on the FTD Journey

Mary Kay Verhoff, a former FTD care partner from Ohio, recently published a book that tells the story of coming to terms with and navigating her husband’s decline from FTD. Published in July, “Just Breathe: A Caregiver’s Journey Through the Depths of Dementia” has 39 five-star reviews on Amazon, where it is available as a…

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2025 TD Five Boro Bike Tour

The AFTD-Team is an Official Charity Partner of the 2025 TD Five Boro Bike Tour, taking place on May 4! We’ve been allotted 10 guaranteed entries to the event. To be awarded an entry, each person must fundraise $500 for AFTD’s mission. If you’re interested in participating on the AFTD-Team for this event, please contact…

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2025 Los Angeles Marathon

Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Los Angeles area and raise funds to help people affected by FTD. The AFTD-Team will participate in the Los Angeles Marathon on March 15-16 as an Official Charity Team. We hope you’ll join us for a…

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2025 Austin Marathon

Join select AFTD staff and members of the local community at the 2025 Austin Marathon as we bring greater FTD awareness to the surrounding Austin area and raise funds to help people affected by FTD. The AFTD-Team will participate in the Austin Marathon on February 16, as an Official Charity Team. We hope you’ll join…

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4th Annual Babson Basketball Fundraiser Game

Spencer Cline and the Babson Men’s Basketball Team are hosting the 4th Annual Babson Basketball Fundraiser Game on Saturday, January 25, 2025. In the past three years, the team has raised nearly $27,000 in support of AFTD’s mission in memory of Spencer’s father, Lawrence, who was diagnosed with FTD at the age of 50.

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AFTD Advocacy Webinar: Paving The Path Forward — Advancing AFTD’s Public Policy Priorities

Families living with FTD have significant unmet needs: access to quality dementia care, policies that are friendlier to unpaid caregivers, and a deeper public investment into disease-modifying treatments. In this webinar, the AFTD advocacy team and experts at the Washington, DC lobbying firm Innovation Policy Solutions will explain how you can advance these and other…

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AFTD 2025 Education Conference – Denver, CO and via Zoom

AFTD 2025 Education Conference Header

The AFTD 2025 Education Conference is coming to the Omni Interlocken Hotel on May 1-2, 2025! People diagnosed, care partners, families, friends, healthcare professionals, and researchers are invited to connect with people who understand the journey, learn about available resources and supports, and engage with experts to gain insight on the latest in FTD research and approaches to care. On Thursday, May 1,…

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Can a Tau PET Tracer Aid FTD Diagnosis? Study Explores How Tracer Performs in Other Tauopathies

Text: Can a Tau PET Tracer Aid FTD Diagnosis? Study Explores How Tracer Performs in Other Tauopathies. Background: A man prepares to receive a PET scan.

A study published in Science Translational Medicine explores how well the brain imaging tau PET tracer F-MK-6240 (flortaucipir) captures the presence of underlying protein clumps seen in post-mortem Alzheimer’s tissue. It explores how effectively the tracer could be used to recognize early stages of Alzheimer’s disease and detect a similar but separate disorder called primary…

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Help & Hope in Review: The Top Articles of 2024

Help & Hope: The Top Articles of 2024 FTD

AFTD is committed to ensuring Help & Hope delivers informative articles and practical resources to ease your family’s FTD journey. Each year, we look back through our archives to see which features resonated most with you, and we share them again. To see more content, we encourage you to look through the Help & Hope archive on…

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