AFTD's personer med FTD Advisory Council's

FTD værktøjskasse

De oplysninger og ressourcer, der er anført nedenfor, er udvalgt af AFTD's personer med FTD-rådgivningsråd baseret på deres personlige erfaringer og hvad de har fundet nyttigt.

Transportation (local):

Rejsehjælp:

  • Air Travel
    • TSA Pre-check
      • Expedites security checkpoint. Must be completed before traveling 
      • 855-787-2227 
    • TSA bekymrer sig
      • Will meet you at airport and escorts you to security and provides assistance before and during the screening process
    • Hidden Disabilities Sunflower Program
      • A simple tool to share that you have a condition that may not be immediately apparent and that you may need a helping hand, understanding, or more time in shops, on transport, or in public spaces.     
    • Information om flyrejser med demens.

Medication: Information to share with your physician.

Information on the use of Alzheimer’s medications for dementia and FTD can be found at the University of CA Memory and Aging Center: Medications and Dementia  

  • Medicin til behandling af følgende symptomer:
    • Angst
    • Inkontinens
    • Søvnløshed
    • Depression
    • Smerte
    • Hallucinationer/vrangforestillinger/svær agitation/aggression
  • Giver specifikke detaljer for hvert symptom, herunder:
    • Lægemidler, der skal undgås med FTD og hvorfor
    • Ikke-medicinske strategier, såsom pres og vægte for at reducere angst
    • Sikrere medicin at overveje
    • Anesthesia  
  • Information for healthcare professionals on medications to treat symptoms of FTD

Demensapps - Gratis apps tilgængelige i Apple App Store eller Google Play:

Social media and online support groups:

Bøger og artikler:

Research information and opportunities:

Økonomiske overvejelser og bistand:

  • AFTD Comstock Livskvalitetsstipendium
    • Apply anytime
    • New grants are available starting in July
  • Social Security Invalideforsikring (SSDI), Program for medfølelse
  • You may also qualify for Supplemental Security jegncome(SSI).
  • Spørg om kortvarig handicap gennem din sidste arbejdsgiver eller din stat, mens du venter på, at SSDI starter.
    • Ikke alle arbejdsgivere/stater deltager i kortvarig handicap.
  • People less than 65 years old, or under the age of retirement, who qualify for Social Security Disability, will have to wait for 2 years before they are eligible for Medicare 
    • COBRA maybe available from your employer but can be expensive
  • It is difficult to obtain affordable long-term insurance after genetic testing
  • You may qualify for a Medicaid program including Home and Community-Based Services (HCBS) 
    • Check your state or county for services
  • You may also qualify for In Home Support Services (IHSS) 
    • Check your state or county for services
  • Der er attorneys WHO can help with Social Security and Disability (including people who are disabled and under age 65). To find an attorney in your state go to https://www.naela.org/FindALawyer eller https://nosscr.org/