Kære hjælpelinje: Comstock Grants

Af Mike Mooney | 4. juli 2025 |
Graphic Text: Dear HelpLine - Comstock Grants | Background: A jar of assorted change overflows onto a table

Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group volunteer told us about AFTD’s Comstock Grants. Can you help us learn more? Living with FTD brings significant changes for both persons diagnosed and their care partners. As symptoms emerge — behavioral changes, language challenges, cognitive shifts —…

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Fremme håb; AFTD deltager i Tau Global Conference

Af Mike Mooney | 4. juli 2025 |
Text: Advancing Hope - AFTD Attends the Tau Global Conference | Background: A photo of AFTD staff members Drs Nicole Bjorklund and Katherine Still at the 2025 Taul Global Conference

In late April, AFTD Research team members attended a premier conference focused exclusively on research into tau, a protein which is aggregated in Progressive Supranuclear Palsy (PSP), Corticobasal Syndrome (CBS), MAPT Frontotemporal Degeneration, Alzheimer’s Disease, and other neurodegenerative disorders. This conference was co-hosted by the Alzheimer’s Association, CurePSP, and the Rainwater Charitable Foundation. It brought…

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Hjernepatologi i overensstemmelse med FTD fundet hos cirka 351 TP3T-tilfælde af motorneuronsygdom i nyere undersøgelse

Af Mike Mooney | 2. juli 2025 |
Graphic Text: Brain Pathology Consistent with FTD Found in Roughly 35% of Motor Neuron Disease Cases in Recent Study

According to a recent study published in the research journal Brain, brain pathology consistent with FTD was detected in roughly 35% of the participants with motor neuron disease, which includes diseases like ALS. Abnormal protein clumps were detected in 90% of the samples studied, with participants classified as having both FTD and motor neuron disease…

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Lovende FTD-genterapi fra AviadoBio omtalt i den britiske Guardian

Af Matt Ozga | 1. juli 2025 |

In London’s Docklands, British biotech company AviadoBio is developing a promising gene therapy to treat FTD. The Guardian wrote about the company’s progress on June 13. AviadoBio’s lead therapy, AVB-101, targets the specific genetic form FTD-GRN, caused by mutations that create a deficiency in progranulin, a protein essential for healthy brain cells. The treatment represents…

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FTD Science Digest: Hjælp med at fremme videnskaben ved at tilmelde dig det opdaterede register over FTD-lidelser

Af Mike Mooney | 1. juli 2025 |
Banner Text: Help Advance Science by Joining the Updated FTD Disorders Registry

It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…

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Den levede oplevelse af FTD: Udfordringerne ved den 4. juli

Af Mike Mooney | 27. juni 2025 |
Text: The Lived Experience of FTD: The Challenges of July Fourth | Background: A hand holds a sparkler and an American flag among a dark backdrop

The following article was written by former Persons with FTD Advisory Council member Cindy Odell. The Council works to ensure the voice of people living with FTD guides AFTD as it works towards a future free from FTD; you can learn more about the Council and current members on AFTD’s website. What an exciting time…

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2. årlige Jim Tobin Memorial Golfturnering

Af Julie Sullivan | 26. juni 2025 |

AFTD-ambassadør Dawn O'Gara er vært for den 2. årlige Jim Tobin Memorial Golf Tournament den 28. september 2025, hvor alle overskud doneres til AFTD Research. Turneringen afholdes på Raceway Golf Club i Thompson, CT. Prisen er $500 pr. foursome eller $40 for kun middagsbuffet. Registreringsgebyret inkluderer 18 hullers golf, green…

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