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Personal Stories

In Podcast Interview, AFTD Ambassador Shares How He Found Purpose Amid Grief

When Scott Oxarart lost his father Steve to FTD in August 2023, he transformed his grief into…

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Photograph of former Rep. Jennifer Wexton

Former U.S. Rep. Wexton, Living with PSP, Featured in “Brain & Life” Magazine 

Jennifer Wexton, a former member of Congress who stepped down after revealing her progressive supranuclear palsy (PSP)…

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Genetic FTD Advocate Linde Jacobs Profiled in CBS Minnesota Segment

Linde Jacobs, a Minnesota nurse who has devoted herself to genetic-FTD advocacy after learning that she and…

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Picture of author Jennifer Levin

Millennial Whose Father Has PSP Explains the Challenges Faced by Millennial Caregivers

When Jennifer N. Levin’s father was diagnosed with progressive supranuclear palsy, she was only 32 and living…

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AFTD Ambassador Shares Husband’s FTD Journey with West Virginia Newspaper

In a May 21 article published in the Charleston Gazette-Mail, AFTD Ambassador Debbie Elkins detailed her family’s…

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Title of the article, against background of artwork by Dylan Sullivan, "Colored Pencils 1"

Former Judge Gains Artistic Ability after PPA Diagnosis

A former judge in Folsom, Calif., has discovered a newfound talent for visual art following a diagnosis…

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