Posts by Lauren Gauthier
Messages of Hope
Messages of Hope
Messages of Hope
Webinar: The Role of Neuropalliative Care in FTD
How can neuropalliative care support individuals and families with FTD? This AFTD Educational Webinar defines neuropalliative care and its role in managing FTD symptoms and improving quality of life. Christina…
Read MoreHelp & Support: Communicating with Persons Living with PPA – Tips and Strategies
Compiled by Stacey Moeller, MSc, AFTD-affiliated PPA Support Group Volunteer Primary progressive aphasia (PPA) is characterized by a gradual loss of one’s ability to speak, read, write, and understand speech.…
Read MoreWebinar: The Speech-Language Pathologist’s Role in FTD Care
This webinar describes how SLPs can develop a practical roadmap that targets a person-centered, functional plan of care to increase meaningful life participation in daily activities. Becky Khayum, MS, CCC-SLP…
Read More3/5/21: AFTD EL-PFDD Meeting with the FDA
On March 5, AFTD hosted a virtual Externally Led Patient-Focused Drug Development (EL-PFDD) meeting focused on FTD. This meeting was designed to give all whose lives have been affected…
Read MoreRare Disease Day 2021: Pushing for FTD Awareness
February 28 marks Rare Disease Day, an annual campaign intended to increase awareness of rare diseases and their impact on individuals and families. While FTD is classified as a rare…
Read MoreCOVID-19: Navigating Risk for People with FTD and their Families
Dear Friends, As our understanding of COVID-19 evolves, I wanted to write you to share expert information and guidance, drawing from members of AFTD’s Medical Advisory Council, and from leading…
Read MoreWebinar: Brain-Behavior Connections in Frontotemporal Degeneration
The cognitive and behavioral changes experienced in FTD are closely related to the loss of neurons in the frontal and temporal lobes of the brain. Understanding the connection between changes…
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