Advancing Hope: AFTD and Registry Staff attend Neurology Meeting
AFTD partnered with the FTD Disorders Registry to attend the annual American Academy of Neurology meeting April 13-18 in Denver. Will Reiter, Ray Frattone, and Shana Dodge from AFTD joined…
Read MoreThe Lived Experience of FTD: Frustrations of FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council work to share the insights of persons diagnosed to help guide AFTD on…
Read MoreFTD Advocate Discusses Isolation and Housing Concerns Faced by Family Care Partners
In a column published by the digital periodical Next Avenue, FTD advocate Aisha Adkins, MPA, CNP, discusses how care partners and people living with conditions like FTD often face overlapping…
Read MoreFirst Participant Treated in AviadoBio Phase 1/2 Clinical Trial for FTD-GRN Gene Therapy
AviadoBio announced on April 15 that the first participant has been treated in its Phase 1/2 ASPIRE-FTD trial evaluating the gene therapy AVB-101 as an intervention for FTD-GRN. “There is…
Read MoreAFTD’s 2024 Driving Hope Golf Tournament (CO)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive course, and spread FTD awareness by joining AFTD’s 2024 Driving Hope Golf Tournament on August 11th at…
Read MoreAFTD’s 2024 Driving Hope Golf Tournament (NY)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive private course, participate in a tennis tournament, and spread FTD awareness by joining AFTD’s 2024 Driving Hope…
Read MoreTips & Advice: Roaming vs. Wandering
In FTD, “roaming” refers to a form of compulsive behavior that presents as walking, biking, or driving the same route repeatedly. While their lengths may vary, the distance of these…
Read MoreNot All Forms of PPA Are FTD, as Recent High-Profile Case Highlights
Not all forms of primary progressive aphasia (PPA) are caused by the same disease pathology with logopenic variant PPA (lvPPA) capable of being associated with either FTD or Alzheimer’s disease.…
Read MoreMay 22, 2024: In-Person Meet & Greet in Bristol, Pa.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Margaret R. Grundy Memorial Library in Bristol, Pa., located at…
Read MoreBristol, Pa. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Margaret R. Grundy Memorial Library in Bristol, Penn., located at…
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