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Max’s “Catch-a-Thon” Gets Press; Event Takes Place March 23rd

A 13-year-old boy from Bethesda, MD will honor his grandfather with a catch-a-thon on Sunday, March 23, 2014.  Max Portnoy and his grandfather share a love of baseball; now that…

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King of Prussia, PA 10-miler and 5K – May 18, 2014

For the third year in a row, staff and friends of AFTD will participate in a 10-mile/5K run and walk on May 18, 2014 in King of Prussia, PA.  More…

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7th Annual Quest for the Cure – May 12, 2014

The Walter Charitable Fund will host its 7th Annual Quest for the Cure Golf Tournament on Monday, May 12 ,2014 at Del Paso Country Club in Sacramento, CA.  For complete…

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Katie Brandt’s Speech on Rare Disease Day in Boston

AFTD volunteer and AFTD New England Regional Coordinator Katie Brandt spoke on Feb. 28th at the State House in Boston about her family’s journey with FTD.  To watch and listen…

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February 28: Rare Disease Day

In support of Rare Disease Day, AFTD will be represented at a Rare Disease Day event in Massachusetts by AFTD volunteers Katie Brandt and Emily Levy.  Katie will share her personal story…

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Mayo Clinic Rochester Seminar for FTD and PPA – March 17, 2014

Mayo Clinic Seminar for Families Impacted by Frontotemporal Dementia and Primary Progressive Aphasia  March 17, 2014 – 9:00 a.m. – 4:00 p.m. Location: The program takes place at Rochester Mayo…

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9th International Conference on FTD

9th International Conference on Frontotemporal Dementias – Oct 23-25, 2014 The Sheraton Vancouver Wall Centre Hotel Vancouver, Canada www.FTDVancouver2014.com To register, click here. WHO ICFTD IS Vancouver was recently selected to…

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Joanne Douglas, Affected with PPA, Gets Published in Alzheimer’s Journal

Joanne Douglas, affected with primary progressive aphasia, had an article and abstract published in the American Journal of Alzheimer’s Disease & Other Dementias  about adapting to early-stage PPA.  Congratulations to…

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FTD: The most common disease no one has ever heard of

Dan Browning, medical writer for the Minneapolis Star-Tribune whose wife is diagnosed with FTD, continues his series of articles on FTD with one entitled “FTD: The most common disease on one…

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Recognizing and Dealing with a Parent’s Dementia – Kimberly Williams-Paisley

Actress Kimberly Williams-Paisley spoke with radio show On Point about her mother and primary progressive aphasia.  Click here for to listen to the show.

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