Posts by Gwen Gainer
TED Talk: How FTD Changed Beth Malone’s Idea of Death (and Life)
Nearly a decade after being diagnosed with FTD, Beth Malone’s dad was placed in a dementia care facility. Beth is a TED Resident, and she recently recorded a TED Talk,…
Read MoreAARP Covers the Tragic FTD-Related Death of Deven Black
Deven Black died tragically in 2016, and while FTD was not the main culprit in his death, it was a menacing accomplice. AARP recently covered Deven’s story in depth, told…
Read MoreMaurice Hinchey, Former Congressman from New York, Dies of FTD
Maurice D. Hinchey, who represented New York State in Congress for 20 years, died on November 22 from frontotemporal degeneration. Earlier this year, Hinchey’s family announced that he was living…
Read MoreNew Short Film Gives Firsthand Perspective of the FTD Journey
VJ &Â Chuck, a powerful new short film by Joseph Becker and ThinkFilm, Inc., captures FTD’s impact from the perspective of the person diagnosed. The film focuses on VJ and Chuck…
Read MoreDonald Newhouse Honors His Late Brother in Interview
Donald Newhouse, president of Advance Publications, spoke about both his late brother, Si, as well as his wife, Susan, during an interview on October 23. Both Si and Susan had…
Read More$20 Million David Geffen Fund Gift Announced at AFTD Benefit
At AFTD’s 2017 Hope Rising Benefit in New York City on October 12, AFTD CEO Susan L-J Dickinson announced that the organization had received a major gift in honor of…
Read MoreFTD’s Economic Burden Is Twice That of Alzheimer’s, Study Shows
The average annual costs associated with FTD is nearly $120,000, nearly twice the costs of Alzheimer’s, according to a study published on the website of the scientific journal Neurology on…
Read MoreContribute Your FTD Story to the Upcoming National Dementia Summit
World FTD Awareness Week starts in less than one week — on 9/24! In the lead-up, AFTD would like to let you know about an important way you can share…
Read MoreDishcloths for a Cause
Laura Dropps of Minnesota is selling handmade dishcloths to benefit AFTD on her Etsy page. What makes these dishcloths so special? Each one is knitted by her aunt who has…
Read MoreChicago Super Run Participants Walk and Run for FTD Awareness
When Chicago’s Frank Callea was diagnosed with the primary progressive aphasia form of FTD at age 54, the multi-decade Chicago Tribune technology executive vowed to make a difference, even as…
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