2019 AFTD Education Conference — Breakout Sessions


Clinical Issues

Managing Behavioral Variant FTD

This session explores behavioral variant FTD from four distinct and complementary perspectives – from the clinical perspective, a care-and-support perspective, and from a person diagnosed and care partner.

Chuang-Kuo Wu, MD, PhD (presentation)
Marianne Sanders, RN (presentation)
Amy and George Shives
Jill Shapira, PhD, RN, facilitator


Managing Primary Progressive Aphasia

This session explores PPA from four distinct and complementary perspectives – from the clinical perspective, a care-and-support perspective, and from a person diagnosed and care partner.

Maura Silverman, MS, CCC/SLP
Tracey Lind and Emily Ingalls
Mary O’Hara, facilitator


Managing ALS/FTD & Movement Disorders

Explore the physical and cognitive challenges of ALS/FTD, progressive supranuclear palsy and corticobasal degeneration from clinical, genetic and caregiving perspectives.

Gabriel Leger, MD
Jamie Fong, CGC
Miki Paul, PhD
Debra Niehoff, PhD, facilitator


Clinical Issues

The Doctor Thinks It’s FTD. Now What?

This session will help those who are facing a new diagnosis understand FTD and start planning for care.

Christy Turner, CDP, CDCM, CCSI
Marianne Sanders, RN


Developing Communication Teams and Tools

Having PPA does not mean you have nothing to say. This session focuses on finding alternative means of communicating when language is lost.

Maura Silverman, MS, CCC/SLP


Developing Environmental & Behavioral Strategies

This session demonstrates how to use a problem-solving approach to develop creative and individualized strategies to address challenging behaviors due to FTD.

Presenters/AFTD Partners in FTD Care Advisors:
Jill Shapira, PhD, RN; Sue Hirsch, MA; and Sandi Grow, RN (presentation)


Loss and Grief in FTD

The experience of loss and grief is complicated. This session will discuss coping with this unique and personal experience.

Bridget Moran-McCabe, MPH, AFTD
Elaine Rose, AFTD Volunteer


Adapting to FTD: A Discussion for Persons Living with FTD

This session features a panel of people living with FTD discussing how to compensate and overcome challenges in daily life. This session is led by and is for people living with the disease. Care partners and family members of those diagnosed will also benefit from this session.

Matt Sharp, MSS, AFTD
Amy Shives, MEd


Open Q&A

Forum for Care Partners

There’s never enough time to talk with professionals who have expertise in FTD. This session provided care partners with an additional opportunity to ask questions and hear the concerns of peers.

Chuango-Kuo Wu, MD, PhD
Mary Austrom, PhD
Maura Silverman, MS, CCC/SLP
Jill Shapira, PhD, RN, facilitator


Find Help, Share Hope: The Power of Social Media Storytelling

This session explores how you can leverage social media to increase awareness and understanding of FTD.

Lauren Gauthier, AFTD Online Community Coordinator, facilitator
Melissa Fisher
Scott Rose
Amy Johnson
Cindy Odell
Lauren Rowans
Kimberly Chu


Engaging with AFTD for Healthcare Providers

Learn about how AFTD can support healthcare providers in your work with people with FTD and their families, and join us to continue to increase awareness of FTD, shorten time to diagnosis and improve the quality of care available.

Sharon Denny, AFTD Senior Director of Programs, facilitator


Forum for Young Adults

An opportunity for family members and FTD care partners in their 20’s & 30’s to interact with experts as well as peers with similar concerns.

Gabriel Leger, MD
Jamie Fong, CGC
Elvira Jiminez, PhD
Mary O’Hara, LCSW, facilitator


Forum for People Living with FTD

This session offered people living with a diagnosis an opportunity to meet with medical, research and dementia experts to discuss questions and care needs.

Kimiko Domoto-Reilly, MD
Marianne Sanders, RN
Matt Sharp, MSS, facilitator


Additional Audio/Video:

Morning Sessions
What Are Your Lifelines?

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