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Help & Hope
Advancing Hope: AFTD Helps Organize C9orf72 Prevention Trial Workshop
A recent publication, Design considerations for C9orf72 disease prevention trials, arose from a two-day workshop that was…
Dear Helpline: What Comes After an FTD Diagnosis?
When a doctor first says the words frontotemporal degeneration (FTD), everything changes. Some describe it as feeling…
Tips & Advice: The Hidden Economic Cost of an FTD Diagnosis
World FTD Awareness Week is highlighting the financial impact of FTD today. When families receive an FTD…
Advocacy Update: FTD Research at NIH Highlighted in FY26 LHHS Appropriations Reports
AFTD is excited to share that congressional reports for the Fiscal Year (FY) 2026 Labor, Health and…
Advancing Hope: AFTD and Registry Staff Attend International Dementia Conference
AFTD and FTD Disorders Registry staff attended the Alzheimer’s Association International Conference (AAIC) at the end of…
Dear HelpLine: AFTD’s Awareness Cards
Dear Helpline, When we’re out shopping, my loved one sometimes feels overwhelmed, and I worry people don’t…
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