Gulf to Goat Bike Ride
Jay Donnelly, Mike McDermott, and 13 classmates from the 1975 U.S. Naval Academy are hitting the road this October in their Gulf to Goat ride. This 1,200-mile journey will raise funds and awareness for multiple charities, including AFTD in memory of classmates and family members who lived with FTD. Kicking off in Apalachicola, Florida, the…
Read MoreDr. Chiadi Onyike of Johns Hopkins Named AFTD Medical Advisory Council Chair
Chiadi Onyike, MD, a neuropsychiatrist and director of Johns Hopkins University’s Frontotemporal Dementia and Young-Onset Dementias Clinic, has been named the new chair of the AFTD Medical Advisory Council. Dr. Onyike takes the reins of the council at a time when global FTD awareness and clinical trials for potential FTD treatments are gaining momentum. “It’s…
Read MoreAFTD 2026 Education Conference
The AFTD 2026 Education Conference is coming to the Hyatt Regency Lake Washington in Seattle on April 30 – May 1, 2026. A free livestream will also be available for those who can’t attend in person. People diagnosed, care partners, families, friends, healthcare professionals, and researchers are invited to connect with people who understand the journey, learn about available resources…
Read MorePBS Documentary Spotlights FTD Couple to Exemplify U.S. “Caregiving Crisis”
Caregiving, a new PBS documentary executive-produced by Bradley Cooper, reveals America’s caregiving crisis through expert insight and intimate stories – including the story of a couple facing FTD. In the documentary, Malcoma Brown-Ekeogu of Georgia, who left her job to care fulltime for her husband Kenneth Ekeogu, is shown feeding and dressing him, as well…
Read MoreFlorida Radio Station Spotlights AFTD Ambassador for His Dementia-Care Advocacy
AFTD Ambassador Dan Moser was interviewed last month about his work supporting FTD caregiving on the radio program Gulf Coast Life, which airs on the Fort Myers, Fla.–based NPR station WGCU. Following a long search for a diagnosis, and then after ten years living with FTD, Moser’s wife Maria passed away about two years ago.…
Read MoreIn-Person Meet and Greet in West Liberty, Ohio
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at Otterbein Green Hills Senior Life Community in West Liberty, hosted by AFTD Volunteer Brad Greek, on August 7, 2025, from 6-8 PM ET. RSVP by emailing Brad. Learn more about and share news of this and…
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