Genetic Counseling and Testing Should Be Offered to Persons Diagnosed with FTD, Experts Argue
A viewpoint article published in the medical journal Neurology argues that genetic counseling and testing should be offered to everyone diagnosed with FTD, underscoring the increasing number of trials for gene-based therapies. Co-authors of the article include AFTD Manager of Genetic Initiatives Kim Jenny, MS, LCGC; Board member Jill S. Goldman, MS, MPhil, CGC; and…
Read More“Alzheimer’s & Dementia” Summarizes Inaugural Holloway Summit’s Discussions on Digital Health Technologies for FTD
An article published in the journal Alzheimer’s & Dementia arose from AFTD’s inaugural Holloway Summit in 2022, which focused on digital health technologies (DHTs) and how they can help diagnose FTD. DHTs use advanced computing platforms and sensors to quantify disease progression and assess clinical outcomes. The article – co-written by AFTD’s Dr. Amanda Gleixner,…
Read MoreUnidos en el camino: reunión de personas confrontando la demencia frontotemporal 2025
Únase y aprenda de otras personas que entienden y han vivido el camino difícil de la DFT (degeneración frontotemporal) en este evento virtual. Este evento es específicamente para personas hispanohablantes y las dificultades que la comunidad latina pueda encontrar en particular aquí en este país. Les daremos la bienvenida además de obtener apoyo y recursos…
Read MoreDuke Caregiver Community Event
Are you a caregiver providing support to a loved one? The Duke Caregiver Community Event, taking place in Durham, N.C., offers insights from experts and ways to connect with services and support systems. Find answers and resources that can help you navigate this journey. AFTD volunteers will be staffing an information table during this event.…
Read MorePassage Bio Provides Updated Interim Data from UpliFT-D Clinical Trial for FTD-GRN
Biotechnology firm Passage Bio recently provided updated interim data from its phase 1/2 clinical trial for its gene replacement therapy targeting FTD-GRN. Experimental Therapy Continues to Show Improved Progranulin Levels In FTD caused by an inherited GRN genetic variant, production of the neuroprotective protein progranulin is suppressed, contributing to the buildup of TDP-43, a key…
Read MorePanera Book Signing and Restaurant Fundraiser
Author and Speech and Language Pathologist Gina Biskupic is hosting a fundraiser at the Panera in West Springfield in order to unite her local community, fundraise, and raise awareness of her recently published book No Fault of His Own. This new book is a story of a family dealing with FTD and the journey that…
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