The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

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Download a Diagnostic Checklist

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Rare Disease Day 2021: Pushing for FTD Awareness

February 28 marks Rare Disease Day, an annual campaign intended to increase awareness of rare diseases and their impact on individuals and families. While FTD is classified as a rare…

African American man (60s) in wheelchair holding hand weights, ready for physical therapy session.

It May Not Be Parkinson’s: A Look at Corticobasal Degeneration

Partners in FTD Care, Winter 2021 Download the full issue (pdf) Corticobasal degeneration (CBD) is a rare neurodegenerative disease that results in nerve cell loss, scarring, and shrinkage of the deeper…

COVID-19: Navigating Risk for People with FTD and their Families

Dear Friends, As our understanding of COVID-19 evolves, I wanted to write you to share expert information and guidance, drawing from members of AFTD’s Medical Advisory Council, and from leading…

thumbnail_Remember Me X With Love - Scott Rose

Husband Honors Wife in Final “With Love” Episode of “Remember Me” Podcast

In the final special episode of the Remember Me podcast in collaboration with the 10th anniversary of the With Love campaign, Scott Rose shared his story of love in honor of the love of his life, his late wife, Maureen…

Play Highlights Possible PPA Link Between “Bolero” Composer and Painter

UnRavelled, a new play written by Jake Broder, tells the uniquely connected story of two artists, French composer Maurice Ravel and Canadian painter Anne Adams, who may have created their…

Remember Me Podcast Special Episode 4 Image Linda and Kim

Daughter Shares Story of Love for Her “Magical” Mother on “Remember Me”

In this week’s special installment of the Remember Me podcast in partnership with the 10th anniversary of AFTD’s With Love campaign, Kimberly Sullivan Chu shared her story of love about…

Persons with Dementia Are Twice as Likely to Get COVID-19, Study Shows

Persons diagnosed with dementia have been found to be in greater risk of being infected by the coronavirus, according to a new study led by researchers at Case Western Reserve…

Son Talks of Finding Moments of Joy Despite Father’s FTD on “Remember Me”

On this week’s special episode of the Remember Me podcast in collaboration with the 10th anniversary of AFTD’s With Love campaign, John Kammerer Jr. shared his story of love in…

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