Passage Bio Provides Updated Interim Data from UpliFT-D Clinical Trial for FTD-GRN
Biotechnology firm Passage Bio recently provided updated interim data from its phase 1/2 clinical trial for its gene replacement therapy targeting FTD-GRN. Experimental Therapy Continues to Show Improved Progranulin Levels In FTD caused by an inherited GRN genetic variant, production of the neuroprotective protein progranulin is suppressed, contributing to the buildup of TDP-43, a key…
Read MorePanera Book Signing and Restaurant Fundraiser
Author and Speech and Language Pathologist Gina Biskupic is hosting a fundraiser at the Panera in West Springfield in order to unite her local community, fundraise, and raise awareness of her recently published book No Fault of His Own. This new book is a story of a family dealing with FTD and the journey that…
Read MoreCharity Bourbon Release
Jameson McKible and Brianna Parr are working with Starlight Distillery for the release of a special bottle of bourbon where a portion of the proceeds will be donated to AFTD. The bottle will be available for sale at the distillery only and will be there until it is all gone. “This bottle is in celebration…
Read MoreGulf to Goat Bike Ride
Jay Donnelly, Mike McDermott, and 13 classmates from the 1975 U.S. Naval Academy are hitting the road this October in their Gulf to Goat ride. This 1,200-mile journey will raise funds and awareness for multiple charities, including AFTD in memory of classmates and family members who lived with FTD. Kicking off in Apalachicola, Florida, the…
Read MoreDr. Chiadi Onyike of Johns Hopkins Named AFTD Medical Advisory Council Chair
Chiadi Onyike, MD, a neuropsychiatrist and director of Johns Hopkins University’s Frontotemporal Dementia and Young-Onset Dementias Clinic, has been named the new chair of the AFTD Medical Advisory Council. Dr. Onyike takes the reins of the council at a time when global FTD awareness and clinical trials for potential FTD treatments are gaining momentum. “It’s…
Read MoreAFTD 2026 Education Conference
The AFTD 2026 Education Conference is coming to the Hyatt Regency Lake Washington in Seattle on April 30 – May 1, 2026. A free livestream will also be available for those who can’t attend in person. People diagnosed, care partners, families, friends, healthcare professionals, and researchers are invited to connect with people who understand the journey, learn about available resources…
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